I have been waiting for the results of a liver biopsy since May-largely because the pathologist was off sick/on holiday and no-one knew whether or not I needed treatment for AIH overlap. I was diagnosed with PBC some 20years ago and had become a bit complacent because although I appear to have some of the associated symptoms they have not prevented me functioning to the best of my ability. Fatigue and lethargy are things I try to ignore as much as possible. This morning I received an appontment with a specialist unit in Birmingham-some 5 hrs travelling from here. There are no units in Wales.This came as a shock as no-one had told me to expect this. I am trying to remain upbeat and tell myself I have been referred because there are no experts nearer to me but I am worried that things may have progressed further than I realise.
Last edited by crundalite
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