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Considering a Bone Marrow Transplant
What are the pros and cons of continuing CLL therapies versus having a bone marrow transplant (BMT)? Dr. Philip Thompson, a CLL expert from MD Anderson Cancer Center, shares his thoughts on this question. https://www.patientpower.info/video/considering-a-bone-marrow-transplant
What are the pros and cons of continuing CLL therapies versus having a bone marrow transplant (BMT)? Dr. Philip Thompson, a CLL expert from MD Anderson Cancer Center, shares his thoughts on this question. https://www.patientpower.info/video/considering-a-bone-marrow-transplant
mcints
in
CLL America Support
8 years ago
Share your story please!
Hello everyone, Several people on this forum have said some very kind things about the book I published a couple of years ago - Polymyalgia Rheumatica and Giant Cell Arteritis - a survival guide. Right now I am working on the second edition. Mostly for the 'patient experience' bit I was drawing on
Hello everyone, Several people on this forum have said some very kind things about the book I published a couple of years ago - Polymyalgia Rheumatica and Giant Cell Arteritis - a survival guide. Right now I am working on the second edition. Mostly for the 'patient experience' bit I was drawing on
Polywotsit
PMRGCAuk team member
in
PMRGCAuk
8 years ago
Good Blood counts = cured?
End of 2013 I was diagnosed with MF and a few months later this was revised to MDS/MF overlap type of symdrom - this resulted in a SCT in August 2015. 8 months down the line from my SCT, my blood counts are very good - white/red/platelets haemoglobin - and have been for a few months now. Although my
End of 2013 I was diagnosed with MF and a few months later this was revised to MDS/MF overlap type of symdrom - this resulted in a SCT in August 2015. 8 months down the line from my SCT, my blood counts are very good - white/red/platelets haemoglobin - and have been for a few months now. Although my
crapaud
in
MPN Voice
8 years ago
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Understanding New Myeloma Therapies and the Role of Stem Cell Transplant
Is stem cell transplant a viable treatment option? How long should maintenance therapy last? From the Myeloma 2016 meeting in Boston, Dr. Thomas Martin from UCSF Medical Center answered these questions and more related to myeloma treatment. He goes on to discuss new and upcoming myeloma treatments as
Is stem cell transplant a viable treatment option? How long should maintenance therapy last? From the Myeloma 2016 meeting in Boston, Dr. Thomas Martin from UCSF Medical Center answered these questions and more related to myeloma treatment. He goes on to discuss new and upcoming myeloma treatments as
mcints
in
Myeloma America Support
8 years ago
Weekly Clinical Trial Spotlight
We firmly believe clinical trials are a great way to get tomorrow's medicine today so each week, we will be featuring a clinical trial from our partner, SparkCures. SparkCures is a clinical trial finder tool and we encourage you to check them out! ********************Myeloma Clinical Trial**********
We firmly believe clinical trials are a great way to get tomorrow's medicine today so each week, we will be featuring a clinical trial from our partner, SparkCures. SparkCures is a clinical trial finder tool and we encourage you to check them out! ********************Myeloma Clinical Trial**********
tclementi
in
Myeloma America Support
8 years ago
My ET Has Progressed to MF: Am I a Candidate for Stem Cell Transplant?
In this Ask the Expert segment, Patient Power community member, Betty’s essential thrombocythemia (ET) has transformed to myelofibrosis (MF) and she wants to know, “What are the general considerations or criteria for putting patients on a stem cell transplant (SCT) list?” Dr. Naveen Pemmaraju responds
In this Ask the Expert segment, Patient Power community member, Betty’s essential thrombocythemia (ET) has transformed to myelofibrosis (MF) and she wants to know, “What are the general considerations or criteria for putting patients on a stem cell transplant (SCT) list?” Dr. Naveen Pemmaraju responds
mcints
in
Fight MPN
8 years ago
Stick or Twist...Not Really.
Hi, PaulaS suggested that I write and let people who know me on here know how I'm doing. She suggested it quite a long time ago, but I didn't know how I was doing until today. I have just had the consultation post chemotherapy and have been told that I have achieved full remission, which is good news
Hi, PaulaS suggested that I write and let people who know me on here know how I'm doing. She suggested it quite a long time ago, but I didn't know how I was doing until today. I have just had the consultation post chemotherapy and have been told that I have achieved full remission, which is good news
zentangle
in
CLL Support
8 years ago
Is the Use of a JAK inhibitor Prior to Stem Cell Transplant Recommended?
Is there a positive correlation between the use of a JAK Inhibitor and stem cell transplant (SCT)? UK viewer, Peter, asks about the recommended use of a JAK inhibitor prior to having a SCT. Dr. Naveen Pemmaraju from MD Anderson Cancer Center responds with a discussion of two studies on this subject
Is there a positive correlation between the use of a JAK Inhibitor and stem cell transplant (SCT)? UK viewer, Peter, asks about the recommended use of a JAK inhibitor prior to having a SCT. Dr. Naveen Pemmaraju from MD Anderson Cancer Center responds with a discussion of two studies on this subject
mcints
in
Fight MPN
8 years ago
My Journey
Hi i have Myeloma it was diagnosed Nov 2012 after being told on numerious occasions that i had siatica ,i was given Radiation then put on a trial drug which put me in remmision until June 2013 it had spread to my pelvis so i had to go on more medication the only problem i had no chemo for 5 months as
Hi i have Myeloma it was diagnosed Nov 2012 after being told on numerious occasions that i had siatica ,i was given Radiation then put on a trial drug which put me in remmision until June 2013 it had spread to my pelvis so i had to go on more medication the only problem i had no chemo for 5 months as
bigpants
in
Myeloma America Support
8 years ago
Are there possibilities other than stem cell transplant in Canada for CLL with 11Q deletion?
My son lives in Canada. He has CLL stage 4 with 11Q deletion. He was taken off Ibrutinib because his Neutrophils were getting low. Then he had a cold and swollen lymph nodes on his neck, and an enlarged spleen. He is now back on Ibrutinib on a reduced dosage of 2 pills/day. His doctor says that according
My son lives in Canada. He has CLL stage 4 with 11Q deletion. He was taken off Ibrutinib because his Neutrophils were getting low. Then he had a cold and swollen lymph nodes on his neck, and an enlarged spleen. He is now back on Ibrutinib on a reduced dosage of 2 pills/day. His doctor says that according
karenmarie
in
CLL Support
8 years ago
New Research from USA about drugs and GCA-- some of this s quite technical but a lay person should be able to follow the gist.
Tocilizumab plus prednisolone was twice as effective as placebo plus prednisolone at inducing complete remission in patients with giant cell arteritis (GCA), and four times as effective at producing relapse-free survival in a small, phase 2, randomized, double-blind, placebo-controlled trial. Patients
Tocilizumab plus prednisolone was twice as effective as placebo plus prednisolone at inducing complete remission in patients with giant cell arteritis (GCA), and four times as effective at producing relapse-free survival in a small, phase 2, randomized, double-blind, placebo-controlled trial. Patients
Judigardener
in
PMRGCAuk
8 years ago
Stem cell breakthrough - using fat cells to create human multipotent stem cells to regenerate body parts
Face it, given the median age for CLL diagnosis is about 72, most of us are wishing we could replace some worn out body parts... While not CLL related, the article below does touch on why bone marrow transplants work (it's stem cells that are transplanted) and why this new technique is an important
Face it, given the median age for CLL diagnosis is about 72, most of us are wishing we could replace some worn out body parts... While not CLL related, the article below does touch on why bone marrow transplants work (it's stem cells that are transplanted) and why this new technique is an important
AussieNeil
Partner
in
CLL Support
8 years ago
Books on PMR & GCA
There is a new book on the block coming out in May: Polymyalgia Rheumatica and Giant Cell Arteritis Authors: Bhaskhar Dasgutpa and Christian Dejaco. 9780198729204 Paperback 03 May 2016 Oxford Rheuumatology Library. Polymyalgia Rheumatica and Giant Cell Arteritis: a survival guide by Dr Kate Gilbert
There is a new book on the block coming out in May: Polymyalgia Rheumatica and Giant Cell Arteritis Authors: Bhaskhar Dasgutpa and Christian Dejaco. 9780198729204 Paperback 03 May 2016 Oxford Rheuumatology Library. Polymyalgia Rheumatica and Giant Cell Arteritis: a survival guide by Dr Kate Gilbert
jinasc
in
PMRGCAuk
8 years ago
Aitl
Hello, I am a 58 year old female looking for others who have undergone a stem cell transplant. I have angioimmunoblastic T cell lymphoma which is rare. If anyone out there can share information and experiences with T cell lymphoma please write. I enjoy music listening. Kayaking and going for long walks
Hello, I am a 58 year old female looking for others who have undergone a stem cell transplant. I have angioimmunoblastic T cell lymphoma which is rare. If anyone out there can share information and experiences with T cell lymphoma please write. I enjoy music listening. Kayaking and going for long walks
Kvick
in
LGBT Cancer Community
8 years ago
NHS public consultation on Tocilizumab in GCA
Tocilizumab is one of the new generation of 'biologic' drugs which are being developed to treat a range of diseases, including inflammatory autoimmune conditions, like GCA and PMR. It has been used in a small number of GCA patients to see whether it could help reduce the risk of relapse and help reduce
Tocilizumab is one of the new generation of 'biologic' drugs which are being developed to treat a range of diseases, including inflammatory autoimmune conditions, like GCA and PMR. It has been used in a small number of GCA patients to see whether it could help reduce the risk of relapse and help reduce
Polywotsit
PMRGCAuk team member
in
PMRGCAuk
8 years ago
High cortisol in evening yet exhausted anyone know what is going on ? blood level analysis and help required
I have Hashimotos and have just got the results of my cortisol test it states that my first three samples are normal but the one late at night is elevated normal range is 0.83-3.86 mine is 4.91 it says on the private Genova report this suggests adrenal hyperfuction what do I do with this now? Could
I have Hashimotos and have just got the results of my cortisol test it states that my first three samples are normal but the one late at night is elevated normal range is 0.83-3.86 mine is 4.91 it says on the private Genova report this suggests adrenal hyperfuction what do I do with this now? Could
spacestar
in
Thyroid UK
8 years ago
Will Oxygen help in the home when suffering from a sickle cell crisis?
Will Oxygen help in the home when suffering from a sickle cell crisis? If this is not the case why do S.C sufferers including those who are a carrier of the Gene need extra oxygen when having an operation? Any opinions and answers would be grateful.
Will Oxygen help in the home when suffering from a sickle cell crisis? If this is not the case why do S.C sufferers including those who are a carrier of the Gene need extra oxygen when having an operation? Any opinions and answers would be grateful.
cazzera
in
Sickle Cell Society
8 years ago
Living with Metastatic Prostate Cancer
My story starts with a colonoscopy in 2008. A small lump was discovered on my prostate so I went to an Urologist who recommended a biopsy. My PSA at the time was 2.1. At that time I did what the doctor ordered. The biopsy was perform in his office and was extremely painful to me. I do believe that
My story starts with a colonoscopy in 2008. A small lump was discovered on my prostate so I went to an Urologist who recommended a biopsy. My PSA at the time was 2.1. At that time I did what the doctor ordered. The biopsy was perform in his office and was extremely painful to me. I do believe that
skateguy
in
Advanced Prostate Cancer
8 years ago
Causes of GCA?????????
Thought others might like to read this which I found when searching for a link between RA and GCA Rheumatoid arthritis and giant cell arteritis linked with solar cycles https://www.sciencedaily.com/releases/2015/06/150615142841.htm
Thought others might like to read this which I found when searching for a link between RA and GCA Rheumatoid arthritis and giant cell arteritis linked with solar cycles https://www.sciencedaily.com/releases/2015/06/150615142841.htm
PMRpro
Ambassador
in
PMRGCAuk
8 years ago
B12 result 253, GP has prescribed 50 mcg cyanocobalamin tablets. Methylcobalamine 5000 mcg better?
Title says it all really! Also what is a good make of Vitamin B complex to supplement this?
Title says it all really! Also what is a good make of Vitamin B complex to supplement this?
seamail57
in
Thyroid UK
9 years ago
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