My story starts with a colonoscopy in 2008. A small lump was discovered on my prostate so I went to an Urologist who recommended a biopsy. My PSA at the time was 2.1. At that time I did what the doctor ordered. The biopsy was perform in his office and was extremely painful to me. I do believe that at the time, prostate cells entered my blood stream that would later be cancerous. The biopsy was inconclusive. Two years later I had another biopsy (in-patient surgery) and the biopsy indicated cancer with a Gleason score of 8 and a PSA of 7. The urology center had a surgeon employed so the doctor recommended a radical prostatectomy. There were two people at work that had the procedure and they highly recommended that I do the same. So I interviewed surgeons only, and had a radical prostatectomy in November 2010. The pathology report on my prostate indicated that the cancer did not spread outside the prostate/margins. After the surgery my PSA was 35 and a PET scan showed that the cancer had spread to my pelvic bones, spine and ribs. Since then I have been on and off Lupron. I just received my fourth Lupro shot in a row which is a record for me. This past winter (2015) my PSA started raising from 12 to 66 this month while on Lupron. I'm experiencing bone pain and taking magnesium multiple times a day as it seems to help along with Cell Forte IP-6. I went on John Hopkins this past Tuesday. Since quality of life is important to me we decided that Abiraterone (Zytiga) & Prenisone would be the next step for me. I would take this in addition to the Lupron Shots and it could be beneficially for a couple months or even a year. They took some blood to test to determine if the protocol would be effective for me. Things like Chemotheraphy, Radium 223, Provenge or Radiation did not appear to be a good alternative looking at risk/reward. They did mention trials of which one sounded hopeful which was a bone marrow transplant, of course its just a theory they have at this time. I'm also in discussion with a facility in California that says they offer non traditional therapies that may eliminate my cancer. In the near future I will have a conference call with them to try to determine the risk versus reward. Issels is the name of the facility in California where they conduct non FDA approved procedures in Mexico. If any one has any experience with this company I would be interested in hearing your experience. Traditional medicine doesn't offer much hope and I hate the side effects and the fact that many of these protocols only extend life for a couple of months on average and carry a lot of risks. On the other hand, I'm beating the odds as my doctor said five years ago he would have estimated that I would not be alive today. Other than the cancer I'm in good health and exercise when I fell good. I just turned 58 a couple of days ago. I do want to let everyone know what I have uncovered that your doctor may not want you to know. Medications like Lupron can be provide by the facility (infusion center) where the injection occurs and the facility will submit a claim to your insurance company that will be processed under your medical benefits. Or you can get a prescription and get the Lupron at a Pharmacy that will be processed under your prescription benefits. If they provide the Lupron at the infusion center my deductible is something like $1600 versus $95 under my prescription benefits. So the lesson here is to check with your insurance company to determine how to obtain your medication at the lowest cost to you. This is applicable to any drug like chemotherapy that is administered outside of a hospital.
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