My son lives in Canada. He has CLL stage 4 with 11Q deletion. He was taken off Ibrutinib because his Neutrophils were getting low. Then he had a cold and swollen lymph nodes on his neck, and an enlarged spleen.
He is now back on Ibrutinib on a reduced dosage of 2 pills/day.
His doctor says that according to the counts it looks like progressive CLL and hopes getting back to Ibrutinib will take care of the situation.
She also said that the lymphs bumped up to 7 which we don't know what it means.
He underwent chemo end of 2013, but was refractory to Fludarabine. He was in remission for about a year and a half. His doctor never mentioned the new drug ABT-199 Venetoclax. She went straight to the possibility of bone marrow transplant.
I find this a bit shocking as there are a few new drugs on the market that I think she should first look into.
Your input will be appreciated.