There is a new book on the block coming out in May:
Polymyalgia Rheumatica and Giant Cell Arteritis
Authors: Bhaskhar Dasgutpa and Christian Dejaco.
9780198729204
Paperback
03 May 2016
Oxford Rheuumatology Library.
Polymyalgia Rheumatica and Giant Cell Arteritis: a survival guide by Dr Kate Gilbert PhD (ISBN: 9781500713409 availabe from Amazon and also direct from PMRGCAUK.
and a booklet called 'Living with PMR&GCA' written by Patients for Patients and available from PMR&GCAuk North East Support.
Written by
jinasc
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Ah. That explains why my Rhuemy is too busy to see me. He has been busy writing books! It will make an interesting read because he is the one that told me "your biopsy is a clear negative so you don't have GCA which is good news because you wouldn't want that". Several months (and much pain) later after a PETCT scan GCA of Aorta was diagnosed. I was given a sack full of meds and I have not seen him since (15 months)
And travelling the world - though actually he hasn't written a lot of the book, he's obviously been a scientific editor which (speaking from experience here) doesn't take QUITE as much time as writing! Just nearly...
Coincidentally, the other editor is a fairly close neighbour of mine - about 8 miles up the road! And a close colleague of my doctor.
How nice to see that Christian lives near you and is a close colleague of your Doctor.
When is he travelling the world, it is 90% to do with GCA and PMR research and taking part in EULAR and collaboration with ARC. This is why he is not always available. However Southend Hospital does have an very good rheumatology dept.
I've just bought this collection of articles. I am very disappointed to see on the first page of this brand-new book that the authors state in the 'Preface' that PMR and GCA are 'exclusively occurring in older people'. I'm not an 'older person', either in my life stage nor under the usual medical criteria (which are usually related to retirement age or people seen under gerontology specialties whose medical needs and presentations can be different to those with younger bodies), although I concede that I'm older than 30, older than 40.
Does anyone know if any age-related data is being collected for these conditions? If not, I might take this on as a project when I'm well enough to do so. It seems to me that there are considerable socio-economic implications as well as medical factors (eg atypical presentation) that could potentially inform medical decision making in the future, and help patients work with their doctors to achieve successful outcomes.
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MGUS and PMR/GCA
I am having headaches not at the temple but over the eyes and top which is unusual. I’m on 10mg of Predisolone. Poor sleep and shoulder pain
NHS app health record says my GCA is minor!
Long term PMR
Newly diagnosed with PMR
