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Acute renal failure
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Our story living with ESRD
Hello, my husband was diagnosed with IgA nephropathy about 7 years ago, was told he had about 5 years until possible kidney failure, the Dr was right on timing. May of 2023 he was hospitalized with ESRD, we have been to MUSC and Mayo Clinic to begin the journey to getting a transplant. It is nice to
Hello, my husband was diagnosed with IgA nephropathy about 7 years ago, was told he had about 5 years until possible kidney failure, the Dr was right on timing. May of 2023 he was hospitalized with ESRD, we have been to MUSC and Mayo Clinic to begin the journey to getting a transplant. It is nice to
Bodhi22
in
Kidney Dialysis
22 hours ago
info on parathyroid please
Hi. This post isn’t about me but looking for info to help my daughter. She has had low kidney function since she had a tummy bug aged 11. She is now mid 40s and at her latest kidney review was told her parathyroid blood level was high. She showed me the numbers but I can’t remember them - they were not
Hi. This post isn’t about me but looking for info to help my daughter. She has had low kidney function since she had a tummy bug aged 11. She is now mid 40s and at her latest kidney review was told her parathyroid blood level was high. She showed me the numbers but I can’t remember them - they were not
HighlandMo
in
Thyroid UK
5 days ago
Imnusupressants Post Transplant
Hello,Im wondering how this whole suppressed immune system works? My husband and I have got covid (6 weeks post TP for him). The whole household has pretty much had it all at the same time, but how will hubbys recovery differ? Is he less likely to recover as quick, more prone to secondary infection
Hello,Im wondering how this whole suppressed immune system works? My husband and I have got covid (6 weeks post TP for him). The whole household has pretty much had it all at the same time, but how will hubbys recovery differ? Is he less likely to recover as quick, more prone to secondary infection
Ewife
in
British Liver Trust
2 months ago
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Tacrolimus vs cyclosporin
Hi, I am currently working with my rheumatologist to plan for second pregnancy. My daughter is 3.5 years old and I was on tacrolimus during my pregnancy (I usually take MMF). I remained relatively well and stable throughout but there were alot of issues with maintaining the tacrolimus concentration
Hi, I am currently working with my rheumatologist to plan for second pregnancy. My daughter is 3.5 years old and I was on tacrolimus during my pregnancy (I usually take MMF). I remained relatively well and stable throughout but there were alot of issues with maintaining the tacrolimus concentration
SonyaNME
in
LUPUS UK
3 months ago
Good News!!!
My dr. approved the buprenorphine for me. I am thinking positive that it will work. She is giving me the patch. I am excited. I have to discontinue the horizant though which surprised me and of course discontinue the oxycodone. Hopefully now you won't have to listen to me complaining and I will
My dr. approved the buprenorphine for me. I am thinking positive that it will work. She is giving me the patch. I am excited. I have to discontinue the horizant though which surprised me and of course discontinue the oxycodone. Hopefully now you won't have to listen to me complaining and I will
lorri214
in
Restless Legs Syndrome
3 months ago
itching
I had a transplant 18 months ago and 6 days ago the hospital reduced my Tacrolimus and increased my Prednisolone to improve my kidney function (although it was no worse than it has been since the transplant). I’m gradually increasing the Tac and decreasing the Prednisolone but today lve started itching
I had a transplant 18 months ago and 6 days ago the hospital reduced my Tacrolimus and increased my Prednisolone to improve my kidney function (although it was no worse than it has been since the transplant). I’m gradually increasing the Tac and decreasing the Prednisolone but today lve started itching
Pie-eater
in
British Liver Trust
3 months ago
Vasculitis in the pancreas?
Has anyone with GPA or MPA been diagnosed with pancreatic issues due to vasculitis? Hubby had has GPA for 15 years, kidney transplant and sinus involvement and most often in remission until now. He has lost 40 pounds( not trying) and must take enzymes to digest food with a very bland diet. All this happened
Has anyone with GPA or MPA been diagnosed with pancreatic issues due to vasculitis? Hubby had has GPA for 15 years, kidney transplant and sinus involvement and most often in remission until now. He has lost 40 pounds( not trying) and must take enzymes to digest food with a very bland diet. All this happened
Sandalsforever
in
Vasculitis UK
3 months ago
Changing Medication
Hi I’m just looking for some advice on Targinact and just Oxycodone please. My neurologist wrote to my GP requesting that I be prescribed Targinact 10mg at night and 5mg mornings increasing if necessary by 5mg increments to maximum of 20mg twice a day, also changing the Venlafaxine I take to either
Hi I’m just looking for some advice on Targinact and just Oxycodone please. My neurologist wrote to my GP requesting that I be prescribed Targinact 10mg at night and 5mg mornings increasing if necessary by 5mg increments to maximum of 20mg twice a day, also changing the Venlafaxine I take to either
Felixstowe
in
Restless Legs Syndrome
4 months ago
B LARGE CELL DIFFUSE LYMPHOMA AFTER 5 YEAR OF POST KIDNEY TRANSPLANT
I got my kidney transplant in dec 2018 now In nov 2024 suffered from NON hodgkin lymphoma now only on tacrolimus 5mg daily .Any advice regarding this then plz
I got my kidney transplant in dec 2018 now In nov 2024 suffered from NON hodgkin lymphoma now only on tacrolimus 5mg daily .Any advice regarding this then plz
bal_123
in
Kidney Transplant Patient Support
5 months ago
My Ckd journey
Hi my name is Dineshwaran.i was diagnosed with kidney failure in year 2003 when I was 19.was on dialysis for two years and did transplant on 2005. Donated by my cousin.it was a perfect match until 2017 where my sugar level was very high. Was on all type of medication and insulin but didn't came down
Hi my name is Dineshwaran.i was diagnosed with kidney failure in year 2003 when I was 19.was on dialysis for two years and did transplant on 2005. Donated by my cousin.it was a perfect match until 2017 where my sugar level was very high. Was on all type of medication and insulin but didn't came down
Dineshwaran
in
Kidney Dialysis
5 months ago
looking for a neurologist
Can anyone recommend a neurologist knowledgeable in RLS in the Bristol/ Bath (England) area ? I currently have a neurologist whom I rate quite highly but who cannot prescribe opioids as they are not on the formulary of the hospital where she practises. She has however asked my GP to prescribe Oxycodone
Can anyone recommend a neurologist knowledgeable in RLS in the Bristol/ Bath (England) area ? I currently have a neurologist whom I rate quite highly but who cannot prescribe opioids as they are not on the formulary of the hospital where she practises. She has however asked my GP to prescribe Oxycodone
etchea33
in
Restless Legs Syndrome
6 months ago
PMR and brachial neuritis
It looks like I have developed a fairly rare condition called Parsonage-Turner syndrome (PTS), also called brachial neuritis. It started with terrible pain in the shoulder, so initially I thought it would appear in the other shoulder and be the beginning of a PMR relapse. But it is taking a different
It looks like I have developed a fairly rare condition called Parsonage-Turner syndrome (PTS), also called brachial neuritis. It started with terrible pain in the shoulder, so initially I thought it would appear in the other shoulder and be the beginning of a PMR relapse. But it is taking a different
dmart7
in
PMRGCAuk
6 months ago
Throat tightness
Hello has anyone had tightness in throat like pressure feeling? I can breathe and swallow ok but it's so annoying. I've been suffering severe fatigue and feeling like my body is full of led my GP continues to take blood and did mention I have hyperthyroidism before Christmas but didn't give me any
Hello has anyone had tightness in throat like pressure feeling? I can breathe and swallow ok but it's so annoying. I've been suffering severe fatigue and feeling like my body is full of led my GP continues to take blood and did mention I have hyperthyroidism before Christmas but didn't give me any
Joylene123
in
Thyroid UK
6 months ago
ACR (Microalbumin/Creatinine Ratio)
My Urine’s ACR result is 8.4 mg/mmol. HbA1C is 8.5. I am very worried. Kindly advise or provide insights.
My Urine’s ACR result is 8.4 mg/mmol. HbA1C is 8.5. I am very worried. Kindly advise or provide insights.
Limeandlemon
in
Diabetes India
6 months ago
Sugar Alcohols Ruined My Health: Learn from My Mistakes
Given the number of members who are intolerant to Teva levothyroxine, this video might be of some interest. Many suspect it is the mannitol content of Teva levothyroxine that lies behind the intolerance. After all, there were also many complaints around the world as Merck have slowly move from lactose
Given the number of members who are intolerant to Teva levothyroxine, this video might be of some interest. Many suspect it is the mannitol content of Teva levothyroxine that lies behind the intolerance. After all, there were also many complaints around the world as Merck have slowly move from lactose
helvella
Thyroid UK
in
Thyroid UK
7 months ago
Hi everyone and Happy New Year
my name is Jill and it’s been along while since I’ve posted anything. I was diagnosed in 1999. Aged 39. Despite being very unwell for months and being ‘fobbed ’ off by my Gp. By the time I was diagnosed I had Saddle Nose deformity. Like alot of you even as a nurse I was very scared and felt alone
my name is Jill and it’s been along while since I’ve posted anything. I was diagnosed in 1999. Aged 39. Despite being very unwell for months and being ‘fobbed ’ off by my Gp. By the time I was diagnosed I had Saddle Nose deformity. Like alot of you even as a nurse I was very scared and felt alone
Essex-jill
in
Vasculitis UK
7 months ago
How much fluid a day when taking Tolvaptan?
. + once
acute
renal
failure
due to drinking only 1 l a day), Osteoporosis, Cholesterinemia, traumatic brain bleeding in 2008; Location: Austria After my mom nearly died twice because of physicians’ mistakes I must sometimes question physicians’ decisions. I hope you could help me.
. + once
acute
renal
failure
due to drinking only 1 l a day), Osteoporosis, Cholesterinemia, traumatic brain bleeding in 2008; Location: Austria After my mom nearly died twice because of physicians’ mistakes I must sometimes question physicians’ decisions. I hope you could help me.
Kristo
in
Kidney Disease
10 months ago
Prolia
I have just received an email from my GP who has arranged for a F2F appointment to see me beginning January to discuss me starting to take Prolia. My last Dexascan in 2021 did show that I have osteoporosis, and I did take Alendronic Acid for the first two years of having Polymyalgia. Since then I have
I have just received an email from my GP who has arranged for a F2F appointment to see me beginning January to discuss me starting to take Prolia. My last Dexascan in 2021 did show that I have osteoporosis, and I did take Alendronic Acid for the first two years of having Polymyalgia. Since then I have
Purplegloss
in
PMRGCAuk
8 months ago
What does having a NEW KIDNEY feel like?
Hi All, I have been in the transplant list for a year now and still waiting to get called. I can’t just help to wonder what having a kidney transplant will feel like. Apart from the fact that it will be a gift of life and freedom from being tied down to dialysis. What does it feel like? Will you
Hi All, I have been in the transplant list for a year now and still waiting to get called. I can’t just help to wonder what having a kidney transplant will feel like. Apart from the fact that it will be a gift of life and freedom from being tied down to dialysis. What does it feel like? Will you
Imaanforever
in
Kidney Dialysis
8 months ago
1 Year Anniversary (Nov 16)
Good evening, Yesterday, Nov 16, 2023, was the one year anniversary for my kidney transplant. Cindy (my donor kidney named after my good friend who helped me decide to pursue transplant eligibility testing) has been a trooper this year. She has soldiered forward without faltering as we’ve battled very
Good evening, Yesterday, Nov 16, 2023, was the one year anniversary for my kidney transplant. Cindy (my donor kidney named after my good friend who helped me decide to pursue transplant eligibility testing) has been a trooper this year. She has soldiered forward without faltering as we’ve battled very
Jayhawker
in
Kidney Dialysis
9 months ago
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