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Finally operation date…..
Hi I finally have a date for my hysterectomy 21st November, my emotions are up and down. I will ask at my pre op but anyone have any ideas how long I will have to stay in hospital for ? Is it day surgery ? Am on the morning list so was hoping I would be home by tea time or early evening. Any
Hi I finally have a date for my hysterectomy 21st November, my emotions are up and down. I will ask at my pre op but anyone have any ideas how long I will have to stay in hospital for ? Is it day surgery ? Am on the morning list so was hoping I would be home by tea time or early evening. Any
Bassem1979
in
Endometriosis UK
2 years ago
Spinal endometriosis? Feeling confused and alone
I was diaognoised with endometriosis back in february this year. I've since had two surgeries the last resulting in in a full hysterectomy. So I'd hoped my problems would have been solved. But as we all know endometriosis is never that simple. Long story short I've also always suffered with back pain
I was diaognoised with endometriosis back in february this year. I've since had two surgeries the last resulting in in a full hysterectomy. So I'd hoped my problems would have been solved. But as we all know endometriosis is never that simple. Long story short I've also always suffered with back pain
Bubble41
in
Endometriosis UK
2 years ago
Please need some support and guidance
Hi all ok trying to cut a long story short here , I have been diagnosed with stage 4 endo on bowel and bladder , I was referred for full / hysterectomy and bowel reconstruction surgery . The long and short is I have been on the waiting list for over a year and have had 3 pre ops and no surgery. Yesterday
Hi all ok trying to cut a long story short here , I have been diagnosed with stage 4 endo on bowel and bladder , I was referred for full / hysterectomy and bowel reconstruction surgery . The long and short is I have been on the waiting list for over a year and have had 3 pre ops and no surgery. Yesterday
Faithstar
in
Endometriosis UK
2 years ago
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Continuous Utrogestan after hysterectomy?
Hi everyone! My little back story.... I was diagnosed with endometriosis back in 2015, skip forward to 2020 and my symptoms got a whole lot worse. I was diagnosed with severe DIE (bowel, ureter and pouch of Douglas), adenomyosis and an endometrioma all affecting my left pelvis. I had a hysterectomy
Hi everyone! My little back story.... I was diagnosed with endometriosis back in 2015, skip forward to 2020 and my symptoms got a whole lot worse. I was diagnosed with severe DIE (bowel, ureter and pouch of Douglas), adenomyosis and an endometrioma all affecting my left pelvis. I had a hysterectomy
77yellow
in
Endometriosis UK
2 years ago
MRI scan
hi, I was diagnosed with endometrial in September 2020, I’ve since had chronic pain and was advised to complete my family and then have a hysterectomy, i have since had my baby and I’m about to start the injections to mimic the menopause, but I would like to have an MRI scan to check for endometriosis
hi, I was diagnosed with endometrial in September 2020, I’ve since had chronic pain and was advised to complete my family and then have a hysterectomy, i have since had my baby and I’m about to start the injections to mimic the menopause, but I would like to have an MRI scan to check for endometriosis
Jodie08
in
Endometriosis UK
2 years ago
CA125
I am just finished my 3rd chemo session, when I spoke to Nurse last week before my 3rd session. I asked what my CA125 was sitting at 2 weeks after my full Hysterectomy it was sitting at 456 after my 2nd chemo session it's was 86 is this looking good? Thanks
I am just finished my 3rd chemo session, when I spoke to Nurse last week before my 3rd session. I asked what my CA125 was sitting at 2 weeks after my full Hysterectomy it was sitting at 456 after my 2nd chemo session it's was 86 is this looking good? Thanks
Beoony
in
My Ovacome
2 years ago
Hormonal Treatments
Hi all, I’m new to the forum but have had confirmed endometriosis since 2017 following laparoscopic surgery for cysts. I’ve found out I now have multiple cysts again, 1 of which is almost 20cm!!! Had a very rushed appointment with an endometriosis consultant on the nhs last week after having trans vaginal
Hi all, I’m new to the forum but have had confirmed endometriosis since 2017 following laparoscopic surgery for cysts. I’ve found out I now have multiple cysts again, 1 of which is almost 20cm!!! Had a very rushed appointment with an endometriosis consultant on the nhs last week after having trans vaginal
Cocolil20
in
Endometriosis UK
2 years ago
Adenomyosis Warriors...advice sought from a new adeno club member
Hi all! I am new to this community as just two weeks ago I was diagnosed with adenomyosis after years of pain and being sent in circles by doctors. Guess I am a new member to the adeno club. The specialist said I need a hysterectomy and talked of IVF. I'm 43 no kids. I don't want a hysterectomy
Hi all! I am new to this community as just two weeks ago I was diagnosed with adenomyosis after years of pain and being sent in circles by doctors. Guess I am a new member to the adeno club. The specialist said I need a hysterectomy and talked of IVF. I'm 43 no kids. I don't want a hysterectomy
nempenthe79
in
Endometriosis UK
2 years ago
Mini pill
hi everyone. I tried noriday mini pill for just under 3 mths but I bled a lot and was quite angry on it 🤦♀️ I stopped taking it a week before my holiday in august, as I was worried it would ruin it with all the bleeding. However I saw my gynea 2 weeks ago for my mri follow up. My endo is severe
hi everyone. I tried noriday mini pill for just under 3 mths but I bled a lot and was quite angry on it 🤦♀️ I stopped taking it a week before my holiday in august, as I was worried it would ruin it with all the bleeding. However I saw my gynea 2 weeks ago for my mri follow up. My endo is severe
Starry1977
in
Endometriosis UK
2 years ago
Struggling a bit
Hi, I was diagnosed in July with 1C Mucinous OC with a few clear cells also found. It was a bit of a shock diagnosis (for consultant as well) as after bloods and MRI etc, nothing appeared sinister. The original affected ovary was only found by chance (random unrelated question to GP and no symptoms
Hi, I was diagnosed in July with 1C Mucinous OC with a few clear cells also found. It was a bit of a shock diagnosis (for consultant as well) as after bloods and MRI etc, nothing appeared sinister. The original affected ovary was only found by chance (random unrelated question to GP and no symptoms
Frankie1405
in
My Ovacome
2 years ago
Just some advice please 🙏
Hi all Hope your all doing well just after a bit of advice really but don’t want to make this long. So I have serve endo and am waiting surgery for hysterectomy and possible bowel resection . I have been on waiting list since 2021 and have had 2 pre ops . My last physical examination was done in February
Hi all Hope your all doing well just after a bit of advice really but don’t want to make this long. So I have serve endo and am waiting surgery for hysterectomy and possible bowel resection . I have been on waiting list since 2021 and have had 2 pre ops . My last physical examination was done in February
Faithstar
in
Endometriosis UK
2 years ago
So near, but feeling so far
I don't know where to start, and I apologise if I ramble.I am awaiting a total hysterectomy with excision laproscopicly. My first surgery for endo. My diagnosis was via CT, then MRI of adenomyosis and Endometriosis with bilateral endometriomas and kissing ovaries, with my reproductive system, unusualy
I don't know where to start, and I apologise if I ramble.I am awaiting a total hysterectomy with excision laproscopicly. My first surgery for endo. My diagnosis was via CT, then MRI of adenomyosis and Endometriosis with bilateral endometriomas and kissing ovaries, with my reproductive system, unusualy
Macdunc29
in
Endometriosis UK
2 years ago
Pain is killing me
Hi, I had a quadruple heart bypass just before my 51st birthday 4 years ago, I have since been left with nerve damage in my torso. They said it would have happened from an underlying issue ok. Then just over a year ago I had womb cancer and had a total hysterectomy but now with my nerve damage I am in
Hi, I had a quadruple heart bypass just before my 51st birthday 4 years ago, I have since been left with nerve damage in my torso. They said it would have happened from an underlying issue ok. Then just over a year ago I had womb cancer and had a total hysterectomy but now with my nerve damage I am in
Pabala
in
Pain Concern
2 years ago
Excision surgery or hysterectomy?
Hi all, I need a bit of help/advise on how to move forward. Just had a call with the doctor. I tried many meds, but they do not help much. I have very tight pelvic muscles that causes pain. I am taking Cymbalta for my nerve pain that is caused by tight muscles. I have Mirena, that does not help much
Hi all, I need a bit of help/advise on how to move forward. Just had a call with the doctor. I tried many meds, but they do not help much. I have very tight pelvic muscles that causes pain. I am taking Cymbalta for my nerve pain that is caused by tight muscles. I have Mirena, that does not help much
Knina
in
Endometriosis UK
2 years ago
reoccurrence of endometriosis after hysterectomy?
I had my hysterectomy 3 years ago as my endometriosis was spreading to my organs. For the past few months I’ve been getting pain and bleeding. Doctors have said it’s normal. But I don’t think it is. Has anyone else had this?
I had my hysterectomy 3 years ago as my endometriosis was spreading to my organs. For the past few months I’ve been getting pain and bleeding. Doctors have said it’s normal. But I don’t think it is. Has anyone else had this?
Tjcmlc1518
in
Endometriosis UK
2 years ago
Cost of going private for a hysterectomy!!
Hi Everyone I’m currently on the waiting list for a total laparoscopic hysterectomy on the NHS but have seen a private consultant because I suspect the NHS waiting time is going to be really long and I haven’t been given a date yet although I am on Prostap injections in preparation, but as I’m constantly
Hi Everyone I’m currently on the waiting list for a total laparoscopic hysterectomy on the NHS but have seen a private consultant because I suspect the NHS waiting time is going to be really long and I haven’t been given a date yet although I am on Prostap injections in preparation, but as I’m constantly
Jingles11
in
Endometriosis UK
2 years ago
contraception medication Advice for symptoms
Hi Quick question, I have an appointment with my GP tomorrow to talk about my Gynae issues and I was thinking about asking to try a Progestogen only pill. I had my tubes tied 14 years ago and had the coil twice but it fell out. While I wait for my hysterectomy I was think would the pill help
Hi Quick question, I have an appointment with my GP tomorrow to talk about my Gynae issues and I was thinking about asking to try a Progestogen only pill. I had my tubes tied 14 years ago and had the coil twice but it fell out. While I wait for my hysterectomy I was think would the pill help
Bassem1979
in
Endometriosis UK
2 years ago
old scars flaring up!
I’m just putting it out there as I am not sure that I may have read something on this forum but I could be wrong. I had a hysterectomy 20 years ago but today an area of the scar felt a bit tender and on further investigation it appears that a small area has hardened and is red! I take Peg injections
I’m just putting it out there as I am not sure that I may have read something on this forum but I could be wrong. I had a hysterectomy 20 years ago but today an area of the scar felt a bit tender and on further investigation it appears that a small area has hardened and is red! I take Peg injections
Grendall
in
MPN Voice
2 years ago
Legal action against all this medical negligence... How to go about it?
Has anyone ever tried to take legal action against medical negligence?? I was never mentioned the possibility that my ovarian cyst and fibroid might have been endometriosis. Was never diagnosed with it despite my many years of suffering with PMS and heavy bleeding etc. I was totally against surgery
Has anyone ever tried to take legal action against medical negligence?? I was never mentioned the possibility that my ovarian cyst and fibroid might have been endometriosis. Was never diagnosed with it despite my many years of suffering with PMS and heavy bleeding etc. I was totally against surgery
CofG
in
Endometriosis UK
2 years ago
Menopause and endometriosis
Good Afternoon Hope you are all well I am 50 years old and going through the menopause I have not had an hysterectomy so still have everything in tact My doctor has put me on oestrogel 2 pumps one on each arm. She also gaveme Utrogestan 100 mg tablet I also have an implant in my arm for contraception
Good Afternoon Hope you are all well I am 50 years old and going through the menopause I have not had an hysterectomy so still have everything in tact My doctor has put me on oestrogel 2 pumps one on each arm. She also gaveme Utrogestan 100 mg tablet I also have an implant in my arm for contraception
harryhonda25
in
Endometriosis UK
2 years ago
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