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Posts - Prostate Cancer Network | HealthUnlocked

Prostate Cancer Network

5,551 members•3,529 posts

All posts for December 2024

Tonight, you are not alone.

As we enter the new year, with all of us in our Malecare Prostate Cancer Support Community, none of us are alone. We acknowledge whatever agony, pain,...

As we enter the new year, with all of us in our Malecare Prostate Cancer Support...

Partner•3 months ago

Terminate ADT after 1 year or continue for 6 more months?

1.2008 diagnosed with prostate cancer, PSA = 6, Gleason = 4 (current usage at the time in Thailand, where I live). Elected to go with active surveillance....

1.2008 diagnosed with prostate cancer, PSA = 6, Gleason = 4 (current usage at th...

•3 months ago

Please support pioneering new programs, group member reach, and amplify patient voices. Here are Malecare's milestones this past year.

Consider making your charitable gift here: https://malecare.org/donate I hope your holiday season has been filled with joy. As we near the end of 2024, I want...

Consider making your charitable gift here: https://malecare.org/donate I hope y...

Partner•3 months ago

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PSA is high and erratic

August 2024 diagnosed Gleason 3+4=7, 8 of 12 cores, Tumor 2TC, Pirads 4 (5mm), Pirads 5 (16 mm X 35mm), No extra capsular extension. No seminal vesicle...

August 2024 diagnosed Gleason 3+4=7, 8 of 12 cores, Tumor 2TC, Pirads 4 (5mm), P...

•3 months ago

PSMA PET Question

I decided to get a PSMA PET in lieu of a biopsy and, now that I have the report, I'm not sure I totally understand it. First of all, there is no mets anywhere...

I decided to get a PSMA PET in lieu of a biopsy and, now that I have the report,...

•3 months ago

Did I lie?

You know how Malecare has been telling you about our "free" resources? Well, here's the cold, hard truth: there really is no free lunch. Our resources are only...

You know how Malecare has been telling you about our "free" resources? Well, her...

Partner•3 months ago

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Please create a gift for yourself and our prostate cancer community with your donation at https://malecare.org/donate

Malecare’s achievements across advocacy, psycho-social support, technology integration, and research form our well-rounded, high-impact nonprofit organization....

Malecare’s achievements across advocacy, psycho-social support, technology integ...

Partner•3 months ago

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Merry Christmas 2024

I whish you an Happy holidays to all of you. I was diagnosed in January 2020; treated with VMAT-RT 3 Gy X 20 fx = 60 Gy and ADT (Lupron Depot 45 mg/24weeks....

I whish you an Happy holidays to all of you. I was diagnosed in January 2020; ...

•3 months ago

Prostate Cancer Diagnosis without Biopsies

https://youtu.be/eApoOu0nU5A Discover a groundbreaking study on how MRI scans could revolutionize prostate cancer screening. Conducted in Germany with 593...

https://youtu.be/eApoOu0nU5A Discover a groundbreaking study on how MRI scans c...

Partner•3 months ago

PSA after SBRT

Any input out there on what PSA values should be six months after SBRT?

Any input out there on what PSA values should be six months after SBRT?

•4 months ago

Over treatment

Lower Gleason prostate cancer is overtreated in the United States, and there are several factors that contribute to this: Aggressive treatments Many patients...

Lower Gleason prostate cancer is overtreated in the United States, and there are...

•4 months ago

Urinary & Fecal accidents

Diagnosed with localized prostate cancer in 8/2023, Gleason 8. Began monthly shots of firmagon (testosterone blocker) in 11/2023. Had EBRT for 5 weeks (5x per...

Diagnosed with localized prostate cancer in 8/2023, Gleason 8. Began monthly sho...

•4 months ago

I have a question about active surveillance opinion

I kind of asked this question before but yesterday I went for a PET scan nothing found I've had an MRI pirad 2 negative bone scan negative CAT scan negative....

I kind of asked this question before but yesterday I went for a PET scan nothing...

•4 months ago

Are you confused about Malecare and Healthunlocked?

I’m Darryl Mitteldorf, the social worker who started Malecare almost thirty years ago. Malecare is about amplifying patient voices, driving research focusing...

I’m Darryl Mitteldorf, the social worker who started Malecare almost thirty year...

Partner•4 months ago

experience with AS at MSK

hi! I was diagnosed with a gleason 3+3 , 2 of 12 positive cores worst being 17% My psa is 5.1 I’m 69 years old I had a consult with an oncologist at a...

hi! I was diagnosed with a gleason 3+3 , 2 of 12 positive cores worst being 17...

•4 months ago

Grade increase

Johns Hopkins UPgraded my cancer with their 2nd opinion on my biopsy slides :( All along I thought I was 4+3 and now they say 4+5. I spent 6 weeks...

Johns Hopkins UPgraded my cancer with their 2nd opinion on my biopsy slides :( ...

•4 months ago

At what Post-RP level to I get PSMA/PET Scan?

My Post- RP (August 2018) PSA level has doubled from 0.09 in June '23 to 0.19 in June '24, and doubled again to 0.40 in December 2024. A visit with a radiation...

My Post- RP (August 2018) PSA level has doubled from 0.09 in June '23 to 0.19 in...

•4 months ago

RadioTherapy Skill Levels

I have put off having salvage radiation therapy for over six-years now. But my Post- RP (August 2018) PSA level has doubled from 0.09 in June '23 to 0.19 in...

I have put off having salvage radiation therapy for over six-years now. But my ...

•4 months ago

What is next? BCR after 14 months

RP in 3/20, 9/44 postive lymph nodes post surgery PSA 1.7 PSMA done 5/20 one lymph node in Paraaortic showed up Radiation to whole pelvic bed with a boost...

RP in 3/20, 9/44 postive lymph nodes post surgery PSA 1.7 PSMA done 5/20 one ...

•4 months ago

Is it time for a chemo or ADT vacation

Getting docetaxel twice a month since 8/5/24. PSA dropped from 15-9-1.7-0.88-0.33-0.12. I have 2 more treatments left. Hating weakness but willing to go the...

Getting docetaxel twice a month since 8/5/24. PSA dropped from 15-9-1.7-0.88-0.3...

•4 months ago

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Malecare Proposes "Pathfinder Act" for clinical trial success in the USA

Malecare is committed to making clinical trials reach everyone. Most efforts by other organizations have failed. Many cause harm by stigmatizing patients or...

Malecare is committed to making clinical trials reach everyone. Most efforts by...

Partner•4 months ago

Just diagnosed Gleason 3+3 AS?

Hi everyone ! I’m 69 years old snd active in good health, wslk snd go to the gym 3x a week. My psa came in high in february(4.8) It had been 3.4 a year and...

Hi everyone ! I’m 69 years old snd active in good health, wslk snd go to the gy...

•4 months ago

Fenbendazole for Advance Prostate Cancer

Hi everyone my journey start this year on March 2024 with Advance Prostate Cancel Stage 4 with Metastasis to Bones and Limp Nodes !!! PSA was 47 !!!! I was 54...

Hi everyone my journey start this year on March 2024 with Advance Prostate Canc...

•4 months ago

Vitawaves vs Caringbridge

https://VitaWaves.org is a free, private digital journaling platform explicitly designed for adults diagnosed with cancer. Developed by Malecare, VitaWaves...

https://VitaWaves.org is a free, private digital journaling platform explicitly ...

Partner•4 months ago

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Questions about active surveillance

Question about prostate cancer. Biopsy 3 + 4 Gleason. 6 out of 12 course positive couple 30%, the rest 10. Pirad 2 MRI which is low I believe 0.41 decipher...

Question about prostate cancer. Biopsy 3 + 4 Gleason. 6 out of 12 course positiv...

•4 months ago

PSA And Symptoms

I’m 54. My psa was 6 in Feb 2023, then 10.3 in Nov 2024. Urologist found hard area on prostate during DRE in Nov 2024. I had my psa tested 8 days later last...

I’m 54. My psa was 6 in Feb 2023, then 10.3 in Nov 2024. Urologist found hard ar...

•4 months ago

Penis sensitivity after ADT and radiation.

I’m wondering if others are having the same difficulty that I am. I had IMRT and HDR Brachytherapy 4 years ago along with 12 months ADT. About a year and a...

I’m wondering if others are having the same difficulty that I am. I had IMRT and...

•4 months ago

Update on PSA Kinetics (update)

DX 4/23. PSA 8.6. SBRT 10/23. PSA 9 12/23 post SBRT PSA 11.96 (No adt) 2/24 - 9.34 5/25. - 4.85 8/24. - 6.48 (Suspected "bounce") 10/24 - 5.9 12/2024 -......

DX 4/23. PSA 8.6. SBRT 10/23. PSA 9 12/23 post SBRT PSA 11.96 (No adt) 2/24 -...

•4 months ago

Why isn't PSMA used as a screening tool for PCa?

From my understanding PSMA are very accurate in determining PCa spread, but it also it is also would be diagnostic in discovering PCa in the Prostate. If...

From my understanding PSMA are very accurate in determining PCa spread, but it a...

•4 months ago

Advice on PC cancer

Hi, I have joined here on behalf of my dad. He had CABG surgery in 2022 and on Nov 2024 he was diagnosed with high PSA. After MRI and Biopsy it was confirmed...

Hi, I have joined here on behalf of my dad. He had CABG surgery in 2022 and on ...

•4 months ago

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