The Journey Continues part 2

[MotoGuzziFan]

Dear all,

Following from my visit to my RO he has advised that nothing should be done at the moment in terms of further treatment. I have another PSA test in three months and he offered a PET scan, more I think because I was questioning as to what should be done should my PSA continue its ongoing gradual rise, post prostatectomy in 2019 my PSA was 0.02, six months later 0.14 and a year after surgery 0.17

He seemed to think that I was worrying unnecessarily, that the risks were incredibly low and that ongoing surveillance for the foreseeable is the way to go.

Any advice or reassurance as to this course of action much appreciated.

[Northcaptain]

Hi there,

There has been an update from EAU on the following of RP:

urotoday.com/conference-hig...

[MotoGuzziFan in reply to Northcaptain]

Many thanks Northcaptain that is very helpful

[Tall_Allen]

Did you ask him why he is recommending against the conclusion of the RADICALS RCT?

[MotoGuzziFan in reply to Tall_Allen]

Hi Tall Allen, can you please explain what RADICALS RCT is? Many thanks Marc

[Tall_Allen in reply to MotoGuzziFan]

I provided a link to it in a previous response to you

[MotoGuzziFan in reply to Tall_Allen]

Thank you!

[HopingForTheBest1]

Shortly before my RP in November 2018, my PSA had been reduced from 20 to 0.12 with 6 months of Lupron and Zytiga/Prednisone. Days after surgery my PSA went to 0.13, then to 0.55 2 months later.

Had genetic testing, which showed BRCA2+. Put on Olaparib PARP inhibitor, and PSA now undetectable for past 14 months. Hope this will continue for a while longer.

Ask about getting genetic testing. This is what precision medicine is all about.

[j-o-h-n]

I think the noise from your exhaust is getting to you.... Just enjoy the brief vacation on your bike.............. p.s. stay awake too.......

Good Luck, Good Health and Good Humor.

j-o-h-n Friday 03/13/2020 1:38 PM DST

[MotoGuzziFan in reply to j-o-h-n]

Thanks John! Just in the process of buying a Triumph so will need to change my name soon...😂

[j-o-h-n]

Nothing like being Triumphfull over your Pca... good move.....

Good Luck, Good Health and Good Humor.

j-o-h-n Friday 03/13/2020 3:55 PM DST

[Jeff85705]

You are still under the 0.2 ng/ml PSA that indicates "chemical recurrence," a level that implies further treatment. As long as you continue to get PSA testing done and it doesn't go up any more, especially to .2. But I am no expert. Perhaps request a 2nd opinion from another oncologist. Good luck.