I feel so alone. : Hello all. My name... - Pelvic Pain Suppo...

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I feel so alone.

AngelInPain profile image
13 Replies

Hello all. My name is Jenny.

Since December of last year I was diagnosed with BV, yeast infection and Chlamydia. Despite treating all of them, I still ended up having so much pelvic pain, chills, feelings of being feverish, nausea, and headaches. And of course, pain during sex. I ended up taking metronidazole to get rid of BV that was still there. After finish my pills, I felt worse, still having a lot of discomfort and pain along with the he usual symptoms. FINALLY I was diagnosed with PID. I took two weeks worth of more metronidazole and doxycycline. That did not help. After a few days after I was sent to the hospital for IV antibiotics for three days, after I was discharged I then took more metronidazole and doxycycline for two more weeks. It’s been three days since taking the antibiotics ( bc I finished them) and I am still in so much pain and I feel so chilly and nauseated, and somehow developed tinnitus in my right ear? I was looking for a forum for Pelvic pain because I feel so freaking alone and I can’t stop crying everyday. I am trying to be positive. I was trying my best to be proactive and it still hasn’t gotten better. I see my doctor in a few days because that was the earlier date that was available but I’m scared he’s not going to help me even though he has. I guess I just feel paranoid that he’s just going to brush off my feelings. I don’t know if I should get a CT scan to see what’s wrong or Laproscopic surgery which worrries because because of the possible side effects and complications post surgery. Is it stupid that u want something to come up just so I have and ANSWER As to what’s wrong with me and if there’s anything that we can do about it? Why does everything have to have a bad side when it comes to medicine. It’s like I have to get worse to get better. I feel like I’ve had to put my whole life aside, I’m 22 at the moment, and I feel so lost and upset. Reading everyone’s post gives me a lot of insight into others issues and problems but it depresses me, with modern medicine surely we can be doing better for women!!!! I just don’t understand. I just want people to talk to about this.

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AngelInPain
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13 Replies
Herbs2 profile image
Herbs2

Hi Jenny, I totally get where you're coming from. I'm 21 and have had pelvic pain, especially pain during sex for 2.5 years now and it was only when I posted on this site that I got to talk to people in a similar position.

It can be scary when you feel alone with these things but I've found this forum a massive help! They have suggested things I had never heard of which gives me hope 😊

Good luck with whatever you decide, we got this 💕 and keep us up to date

AngelInPain profile image
AngelInPain in reply toHerbs2

Thank you so so so much! :( this means the world to me. Especially in a time like this. I don’t know anyone close to me who has experienced anything like this so I’m feeling very alone in terms of my place in real life. I really hope you good luck as well and I am glad to hear there are people giving good suggestions for you!! Pelvic pain is truly so debilitating at times. I will be keeping this post updated! I appreciate your response so much 😭🥺❤️

introuble profile image
introuble

I’m in constant pain too

Not officially diagnosed with pid , dr didn’t believe my pain, no support in real life........

Have u join FB support group for PID?

AngelInPain profile image
AngelInPain in reply tointrouble

I have not joined the FB support group yet. And I know many others have probably suggested this but have you considered a different doctor? Or gynecologist?

introuble profile image
introuble in reply toAngelInPain

Dr visit are so expensive in my country, i go private for it.. and i paid for unnecessary treatment and test... the only left for me is the laparoscopy surgery which is my last resort :(

Still looking for different gyne but now too tired to start over from square one..

Nikki1974 profile image
Nikki1974

Hi Jenny. So sorry you're still struggling, it does sound like the infection is still present, i'm in the same position as you and it's frustrating and worrying trying to work out what's going on. Hopefully, things will ease off for you and the doctor will do the right things in sorting the pain out for you. Just a few things. If you have a partner, has he been treated for chlamydia? There is also a bacteria called mycoplasma and ureaplasma that can cause PID and infection symptoms but it's not routinely screened for, especially in the UK, you would have to go privately to get tested but its worth ruling it out if things don't improve for you. Take some high strength probiotics to rebalance the good bacteria in your body too as you have been on so many antibiotics. If it continues, I would request an MRI or a laparoscopy so other issues can be ruled out. Let us know how you get on

AngelInPain profile image
AngelInPain in reply toNikki1974

Thank you for your response!! I am so sorry to hear you are going through the same thing, it’s just so terrible and feels like life isn’t normal. I of course wish you the best of luck as well with finding treatment in recovery! We can’t give up. We can’t. Yes my partner was treated for chlamydia but I actually caught it from someone else I had been seeing and he didn’t even know he had it until I told him I had it because my partner doesn’t see other people and if he does he would use a condom but I know this other guy I had slept with did not (I always think about how I did this to myself and it tortures me everyday.) and I was careful with anyone I slept with but this guy was clean like two weeks before we had done anything and I guess he slept with a girl who had it and thought he was ok by the time he saw me. I regret it so much. But I can’t keep looking back, no judgement or anything please. I would have never slept with him if I knew I might have something but I knew I was clean. But anyways I made sure that he and my partner both got treated. I live in the states but I will definitely ask my doctor about those bacteria just in case!! And thank you for the advise I will definitely be taking probiotics because I have been on these damn pills for months now and surely my body has suffered for that. I’m going to see if I can get an mri or lap surgery done for sure because I’m tired of the uncertainty.... I just want to live my life again... I wish there was more help for those with pelvic pain, I never thought I would have to deal with it and it’s so frustrating to see how many people suffer with this with no immediate proper treatment or recovery.

Simo7 profile image
Simo7

Hi Jenny,

Sorry to hear your feeling so fed up, understandably so. Forgive my ignorance but what's BV? I was reading your symptoms and they sound a lot like endometriosis. I've had it for 20 plus years. I'm not a Dr. but I remember being told I had PID in the early days and I suffered from recurring yeast infections. If you haven't already, it'd be an idea to keep a track of when you get pain to see if it's cyclical, related to menstruation & ovulation. The nausea, chills, migraines & pelvic pain could be a number of things (but I get them all with endo') but if you see a gynaecologist a period tracker is handy to help rule things out.

Whatever happens with your GP don't give up, this is your body and you know your symptoms aren't right. Wishing you well x

AngelInPain profile image
AngelInPain in reply toSimo7

No it’s not ignorance! It’s Bacterial Vaginosis, it happens when the flora in your vagina becomes unbalanced! And thank you for your thoughts, I appreciate them so much and talking to people on this forum has been so helpful to me. I will definitely ask about possibility of endometriosis! And that’s a great idea, I’m already using the Glow period tracker app but I’m going to make sure to log my symptoms every day. And I agree about the symptoms, it makes me so anxious because all those symptoms could mean so many different possible diagnostics. Just need to find out if PID is really what I have and if it is or isn’t, I want to take the fastest and best steps to getting back to normal. I appreciate this so much because I hate being sent home feeling like I got no help. I KNOW my body and that it DOESNT feel normal!!!! Thank you for your response and kind words it means alot to me, just a few days ago I was feel so horribly alone. I am feeling more encouraged now

Introuble82 profile image
Introuble82

hi.

what you do for pain?

AngelInPain profile image
AngelInPain in reply toIntrouble82

Currently I use an ice pack or take Tylenol, unfortunately.

Introuble82 profile image
Introuble82 in reply toAngelInPain

Dear, please keep us posted!

i will praying for you

introuble profile image
introuble

Hey, how are you now? Hope you’re feeling better

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