Feel like I have a infection

[Summer95]

I am 20 I have dealt with pelvic pain for the last couple years. It started with bacteria vaginosis and after I started having sex I started having really bad pelvic pain. I feel like I have PID but all my test come back negative. I'm so scared bc I feel like I have a serious infection. I lost the erge to have sex, I feel nauseous, have chills, my hips and knees hurt so bad, it feels like I can't empty my bladder sometimes, my body feels weak and tired, my lower stomach is so bloated and super sensitive. No doctor will take me serious and I'm honestly so scared.

[pelvicpain123]

Hi Summer95. I am so sorry to hear about your pain and experience. I have a similar experience and after many trips to the GUM clinic (nothing was found and all tests were clear) I insisted that my GP started me on antibiotics. Sometimes PID is not easy to diagnose and tests do return as unconclusive. After the antibiotics I am still suffering from the same symptoms and am finding it impossible to have intercourse as the pain then becomes chronic. Have you been to any specialists? Maybe ask to see a urology specialist in gynaecology. It is not acceptable for you to feel like this and not have any investigation into what it might be. I am on the waiting list now to see urology after a number of trips to my GP. Your GP should at least refer you to somewhere to start looking at what this could be.

[Summer95 in reply to pelvicpain123]

You say you demanded to be put on antibiotics? What kind and for what?

[pelvicpain123 in reply to Summer95]

Sorry for the delay, I haven't been on here for a while.

The GP prescribed me antibiotics for PID for a month - metronidazole 400mg (x2 per day), Ofloxacin 400mg (x2 perday), Dicloflex 50mg (x3 per day).

In my case they were not helpful. My point was they/GP could try and see if that relieves your symptoms as sometimes it is hard to diagnose.

[Hidden]

It is possible that you may have damage to a nerve, muscle, tendon etc. which may leave you susceptible to infection i.e. infection of the urinary tract and vaginal infection. If there is definitely no infection found after having these infection screening tests I would ask your GP for further investigations. There are pelvic, vaginal and perineal ultrasounds which your GP can order. MRI's , (medical resonance imaging) to look for any structural cause of the pelvis and vagina. This may require referral to a hospital consultant i.e. gynaecology or neurology. There are also nerve and muscle function tests that can be done ie ENG or EMG of the pelvis. You can google Nerve and Muscle Conduction Tests: ENG, EMG. The ENG can identify if your pelvic nerves are normal or not. The EMG can assess the pelvic muscle function to see if pelvic muscles are normal. You need to discuss all of these options with your GP to find the cause of your problem. All the best.

[blondeedlebug10]

I'm not sure where you're located, but Dr. Jerome Weiss in San Francisco specializes in pelvic issues. I'm going to see him next week after Thanksgiving. Also you can start using fem dopholis that generally to see if you can find some balance. There's so many other options to look for naturally. I'm not saying to stop searching with your physicians. Baking soda dissolved in warm bath. Hard to believe but you could also be reacting to a man's semen. Do some Internet googling for these sorts of things and you can contact me we could talk in person on the phone if you like . I do understand that bacterial vaginosis can also become a condition. But as a wellness consultant I choose other venues as well

[BaneBane2424]

How long do you suffer? Don't let this scare you or something. I am a 22 yo male and after a chlamydia infection, this happend to me and ruined my life. Pain is 24/7 present. Genital, penile, perineum, buttocks, low back, pelvis, abdomen, worst is after ejaculation, I can't do that anymore because the pain was so bad that I fel on the floor and started crying.. It really kills me. I cannot sit, lie down long, nothing. And I go to toilette every half to an hour. Really don't know what to do. I didn't slept for 3 months because of this.

[Hidden]

Hi BaneBane2424 Did you find the cause of your problem. Did you see a Uro-neurologist at all?

[BaneBane2424 in reply to Hidden]

Yes I did. They cannot find the cause. No bacteria, every possible scans and examinations show no trace of anything. Blood samples fine. I will go insane because of this..

[Hidden]

From your symptoms I thing your problem may be neurological. The most likely nerve is possibly the Pudendal Nerve. I would suggest you get a referral from your GP to a Pain Management Specialist at the Pain Management Clinic.

There your pain management specialist will discuss your symptoms and medical history i.e. what event do you remember that may have caused this problem. The Pain Management Specialist will give you injections along side the nerve in the area which is causing the symptoms.

The injection comprises of lignocaine a local anaesthetic and the drug cortisone which is a steroid which reduces inflammation compressing the nerve. This is done under CT guidance which means the Pain Management Specialist can see the nerve while administering the injection.

The effects of the treatment may vary some will have longer pain relief than others. It may need more than one treatment. Your Pain Management Specialist will arrange to see you again to review how effective the treatment was for you.

You can google ' Pain Management Injections ' You can google Pudendal Neuralgia in Males, Symptoms and Treatment.

All the best.

[Summer95]

Thank you guys this has been so frustrating and makes me so depressed I feel i will live like this forever and I'm so scared to get into a relationship bc I can hardly have sex. I been to doctor after doctor. I take inflammatory pills for my pain in hips, legs and knees and it helps but only for so long. Only thing they could find was bv and told me my cervix were red.

[Hidden in reply to Summer95]

Sometimes BV if not treated in time can proceed to turn into PID, you should let them know to see if they hear you with that as well, and that you have painful intercourse.

[Summer95 in reply to Hidden]

Thank you so much! I just want my life back

[Hidden]

Me? No, but I asked my doctor questions and also did research

[introuble]

Hi summer,

How are you now?

Did you still have pain dear?

Please update

[Nikki1974]

It seems there are a lot of us on this forum with very similar stories of suspected PID but with tests and swabs coming back negative. Unfortunately, without positive test results doctors and the medical profession wont look at the bigger picture or listen to symptoms, they just go by results. I know my body and that theres an infection somewhere not being picked up but as a lot of people are finding, theres not much help out there!

[introuble in reply to Nikki1974]

Hi Nikki, do you still have lower abdominal pain?

[Nikki1974 in reply to introuble]

Hi introuble. Yes its been 3 years and i still suffer with pelvic and back pain, frequent utis and what i believe is PID which flares up badly every couple of months.

Have you pushed for a laparoscopy?

[introuble in reply to Nikki1974]

Hi Nikki,

No date yet dear - in fact I’m scared.

How’s your period? Is it heavy or lighter period?

[Nikki1974 in reply to introuble]

I had an endometrial ablation several years ago as my periods were extremely heavy, it really helped lighten them but whenever i have a flare my periods are extremely painful. I would push for a laparoscopy, it may provide a more detailed of picture as to why you’re still struggling with pelvic pain

[introuble in reply to Nikki1974]

Ni Nikki, heavy period and you didn’t diagnosed with endo right?

Yes I’m gonna do it but ahhhh I’m too scared, 50-50 changes to get better right.. but i think I’m gonna do it to rule out everything

Day by Day I’m feeeling weak and fatigue.. you are working mom with 2kids, how do you manage.. I’m impressed!

[introuble in reply to Nikki1974]

My period last only 4 days and light blood

Sometimes with bad cramping

[introuble]

Summer, what is your treatment now?

[Summer95]

Sad to say I have given up hope. I just try to manage the pain the best I can. Over the years I have racked up so much money between different doctors, test and ER visits. I’m not really sure what to do next

[introuble in reply to Summer95]

Dear!! Just like me!!

I’m so sick geting in and out to get treatment.. last time I cried infront of my Dr!

Same like me!! I’m so sick and tired now!!

I msg you!

[Nikki1974 in reply to Summer95]

So sorry to hear that Summer95. You story is identical to mine. I had BV, then had sex and bam, pelvic pain, temperature, lots of discharge, painful sex, nausea. 3 years later and I'm no further forward. They dont believe I have an infection as my swabs come back clear, even though my laparoscopy picked up free fluid in my pelvis which is PID and that was 18 months after I had been numerous amounts of oral antibiotics. Just a few thoughts for you - have you been testing for mycoplasma or ureaplasma? They aren't detected on standard tests or std tests. Have you had a laparoscopy? Have you taken any probiotics to try and put some good bacteria back into you? Unfortunately, for myself I had the tests but they came up negative and taking probiotics doesn't help for me which is why I'm convinced I need a longer course of antibiotics or at least some IV ones. Mine is currently flaring so I've decided now I will go into a & e, and I will continue to go in until they give me another laparoscopy to see what they are missing. The pain is getting bad again, I feel sick, my stomach is swollen to the point I look pregnant and I'm burning down below, so enough is enough, time for me to start demanding some answers. I hope you get the same