Alkaline phosphatase results worried

[Shaunwood]

Hi all hope everyone is OK 👌 had phone consultation &worried about results ov alkaline phosphatase dr said they were higher than last results I'm to have a scan on liver wats gone wrong was doing so well 3yrs after transplant is there anyone out there who can give me advice also anyone who's had a transplant & had this problem &how was it solved so worried

[Gabe61]

I can’t give you any advice on that as I haven’t been there yet but I’m sending love and prayers to you ❤️

[Shaunwood in reply to Gabe61]

O thanks so much

[Shaunwood in reply to Gabe61]

I've read ur profile & u have got pbc the same as wat i had iwas diagnosed in 2012 but i must ov had it 4 yrs as I lost a lot of weight &was in pain every time i ate then I started 2 turn jaundice still going 2 hospital 4 checkups &was told tabs were no longer working &last resort transplant we could ov fell through the floor anyway i got over shock &had transplant 13th May 2018&have been ok up till Monday anyway i hope you're OK but this hot weather isn't good making me feel awful please keep intouch as i would like 2 no how u r getting on. Pat

[Gabe61 in reply to Shaunwood]

I will definitely stay in touch. It sounds like your struggle with PBC is so hard just like mine. Take care of you 💕

[butterflyEi]

Hi Shaunwood did the specialist say how high you alkaline phosphatase was? It may be worth speaking to the PBC Foundation helpline. I cannot see which country you are in but if not in the UK I believe they can contact you via Messenger or What's App.

Hopefully someone with experience of this will come along soon with some help.

best wishes

[Shaunwood in reply to butterflyEi]

Thanks 4 ur reply I am in UK under QE birmingham dr didn't actually say just it's gone up over 130 consultant wants a scan & has put me back on urso just 2 b on safe side 2 stop pbc coming back ihad it 4 many yrs &in the end had 2 have a transplant so will just have 2 wait &c wat shows up Thanks 4 your concern hope u r keep well 👍