Good morning and a happy autumn Sunday to you all!
Finally my AST/ALT is back to normal levels again! Ggt dropped to 50 (huge improvement).
Only alkaline phosphatase staying up around 200.
Any of you experiencing the same?
I was diagnosed December 2013 based on positive AMA (MK2 negative), Sicca syndrome, exhaustion). Started on Ursodiol it took one year for AST/ALT/GgT to drop to normal. Phosphatase stayed high around 200.
Specialist said that was unusual phosphates se should drop sooner and would be marker for longer transplant free survival (week).
Decided to take me off Ursodiol January 2014 to perform liver biopsy in April. By then all 4 enzymes where skyrocketing worse than before diagnoses!
Biopsy came back not conclusive for PBC.
Specialist proposed to stay off Ursodiol until end of 2015 to reevaluate.
I went to my GP after 6 weeks for liver tests which were so bad I asked to be put on Ursodiol again summer 2015.
All enzymes dropped by now (reloef) except the phosphatase.
Hardly itching, all other kinds of inflammation (all other autoimmune diseases excluded by thorough Reumatologie checkup) and extreme fatigue.
Actually despite improvement of liver tests my extreme fatigue is getting worth by the week.
Any of you experiencing something similair?
Best wishes and hang on in there. Even on the bluest day we can take joy out of the smallest things.
Thank you all for your presence and attention. Martina