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PA and alcohol intolerance

Mrl1234 profile image
21 Replies

Hello everybody,I tried a search and didn't see, I was just curious if anybody here became alcohol intolerant throughout their journey? I'd love to meet friends for a drink, but I feel absolutely crummy if I have even one drink. I was just wondering about others' experiences with this. (Especially since B vitamins are important to aid in digestion of alcohol.)

Thanks!

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Mrl1234 profile image
Mrl1234
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21 Replies
Nackapan profile image
Nackapan

I didn't have any alcohol for 3 years .Hoe long havd upu been poorly ?

Om over 6 years in and now enjoy a glass of wine

200mls tops .

Not had a drink out at all.

If I felt crummy I wouldn't bother .

Must listen to our bodies

Mrl1234 profile image
Mrl1234 in reply toNackapan

Yeah I haven't had a drink in about 6 months. I just can't. It's not worth it to me for how poorly I feel. I just wonder if people here have had the same reaction, and if they were able to sit down socially with friends to have wine with dinner or something. I just feel like nothing will ever be the same after all this, and all I want is a sense of normalcy. Nothing crazy, just one glass occasionally would be nice. 😔 But, I suppose it's better this way since alcohol isn't good for you anyway. 🤷🏻‍♀️

Nackapan profile image
Nackapan in reply toMrl1234

Yes it's the 'new you ' I agree some sense of our 'normality ' a good aim.

I've still got friends that don't 'get it '

Can't do the activities we used to share .

Technoid profile image
Technoid

Zero or very low alcohol drinks have been improving a lot in taste the last few years. Worth revisiting to see if they might suit you.

mcgill.ca/oss/article/medic...

charks profile image
charks

I drink wine and cider. I can't drink anything with .gluten and I don't drink spirits. However I do add ice and water to my wine to lower the alcohol level and always eat snacks with my drink. I have given up gluten, dairy and sugar. Wine is my only treat now and I would be devastated if I had to give it up!

BeachArt profile image
BeachArt

I didn't have alcohol for a couple of years because it affected me so badly when I did. Alcohol depletes B12 so it made sense to me that it would make me feel rubbish. It also made sense to me to refrain from drinking for a while. After all, I was SI'ing every other day to rectify the deficiency and get my levels up, so why would I drink alcohol if it was going to deplete said levels? However, I am 8 years in self injecting and I can enjoy a drink now. I don't drink regularly, but I'm able to enjoy a glass or two every now and then. I still find that wine affects me more than spirits, but I do love a prosecco (which weirdly doesn't affect me as much as 'still' wine). And I love a cocktail or two. If you are still in the early stages and alcohol is making you feel rubbish then it's a no-brainer: avoid it. But that doesn't mean that you won't ever be able to drink again. Just give your body time to heal x

oilbeetle profile image
oilbeetle

Thats my experience, tollerance reduced steadily then after diagnosis and treatment I find its just not worth the effects. I'm getting what feels like a one bottle of wine hangover from one or two small glasses. I even get the headache coming on while I'm drinking that glass of wine. Beer is worse, one pint can give me a nasty hangover.

GP seeems totally uniterested in it and web searched have been unproductive. However, I think there is some kind of link, possibly in the gut, possibly the liver.

Myoldcat profile image
Myoldcat

I lost my alcohol tolerance about 15 years ago, and although I miss the conviviality of it, I feel so bad with just a couple of sips that it's no hardship to abstain. And as Technoid says, there are so many more interesting alternatives around now that I dont think I'll be taking the risk yet, even 15 months in to eod injections.

Nackapan profile image
Nackapan in reply toMyoldcat

Wise took me a few years to even fancy it.

WotNotAgainM8 profile image
WotNotAgainM8

Hi, now that you mention it I have really stopped drinking alcoholic beer or spirits but do drink a small glass or red wine with my dinner every day. I have been S/I my B12 meds for over 20 years and have found that I enjoy non alcoholic / low alcohol beer - ‘Guinness 0-0’ to be exact. They used to advertise Guinness as a ‘baby in every bottle’ back in the 1950’s, as it is like a ‘food’ source in a bottle. It also tastes nice when cooled. I just seem to prefer non alcoholic drink these days. Hope this helps. 👍

DiSews profile image
DiSews

I simply cannot stand the smell of alcohol any longer, let alone drink it. Perhaps that will change in time, but I don't have much energy for social events so meeting someone for a coffee in the morning works so much better for me right now anyway.

eclilley profile image
eclilley

Yep! I just stopped drinking alcohol.

Bellabab profile image
Bellabab

I only drink alcohol on very are special occasions and it is just one glass of wine. It is nothing to do with my B12D I just want to live longer which at 81 years has become important.

topazrat profile image
topazrat

I'm the exception then 🤣

I have a glass of wine most evenings and feel fine. Two glasses and I fall asleep, so I'm a cheap date 🤪

Nackapan profile image
Nackapan in reply totopazrat

How far into b12 injections though .I'm okay now and I'm 6+ years in

topazrat profile image
topazrat in reply toNackapan

Its never been a problem. I enjoyed a glass of wine before PA and that didn't change when I started on jabs.

holyshedballs profile image
holyshedballs

I found that gluten including beers make me feel worse. I've changed to wine and I feel much better on wine.

scnuke profile image
scnuke

I can tolerate one drink/week occasionally. However, more than that and it becomes akin to drinking battery acid and my hemorrhagic gastritis flares up within a few hours. I miss a few beers on the weekend and some high-end bourbon in the evening, but it's just not worth the pain and several days to recover. My stomach pain radiates into my chest and I've had a heart attack and bypass surgery, so it kind of freaks me out. Not worth it.

RoMello profile image
RoMello

I have become increasingly reactive to alcohol over the last decade or so. I get a streaming nose after about 20 to 30 minutes: it's like an instant cold that lasts about 8 to 12 hours. Wine is worse than beer. And I feel terrible and exhausted after.

I had no allergies except dust until I was diagnosed with PA over 20 years ago, but I have gradually become allergic to pollen sulphites and preservatives in food and drink in the last 15 years. And finally, after a couple of bouts of COVID, developed nasal polyps (common with those with multiple allergies). I had an operation recently which helped with severe obstruction and continuous sniffles. I have to take daily antihistamines and steroid nasal spray. How long the improvement lasts is uncertain, but I'm hoping...

I'm not sure if the allergy development is anything to do with PA, but I rarely drink now, other than an occasional half of beer a couple of times a year. And I avoid alcohol dust, pollen, moulds, sulphites and preservatives (even in dental anaesthetic) The fatigue and 'cold' symptoms following are just not worth it!

I'm not sure if this is of any use to you... It's an excellent question though 👍🏻Others may be able to add to your fact finding.

Myoldcat profile image
Myoldcat

Well it sounds as though we're pretty much all - as topazrat puts it - cheap dates! 😂

Ettenent profile image
Ettenent

I have recently had a similar experience.I found research on the trigeminovascular system and how damage to this nerve in the neck can result in headache from small amount of alcohol.

PA can cause demelination of nerves so it can be a common area for nerve damage. I have always been a light drinker and consume h2o and food with drink so it was strange. But, I waited 6 months and then cautiously tried a drink with dinner. And this time no headache.

Weird, but PA is weird. Just go with the flow.

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