Hello lovely ladies, I'm hoping for some opinions on my situation. To summarise what has happened, I was diagnosed with stage 3a ovarian cancer back in March of this year after debulking surgery. I started chemo in mid May with the familiar Carboplatin/Taxol combination, but on the first session I had an anaphylactic reaction to the Taxol, so only managed to have the Carboplatin. My oncologist decided that we would go ahead with the Carboplatin alone - so cycles 2, 3 and 4 were Carboplatin alone, but my CA125 continued to rise throughout. For cycle 5 my oncologist decided to still go with Carboplatin, but add in Taxotere (a sister drug to Taxol), however, I had another anaphylactic reaction to Taxotere, so we still ploughed ahead with the Carboplatin. So now I am 5 cycles of chemotherapy later, with a rising CA125 and according to my oncologist "the cancer is behaving badly" and I just feel the Carboplatin is an absolute waste of time (for me).
At my next oncology appointment I want to try and take control a bit more because I don't see the benefit in continuing with the Carboplatin, but what should I be asking? What should I say to my oncologist? There must be alternatives, but none are being suggested, in fact he was talking about stopping the chemo and waiting till something shows on a scan! I feel it'd be too late by then as it would have spread and I'll be even further down the line. I'm 48 years old and can't really understand why alternatives aren't being suggested.
Any opinions, help or advice is welcome and thank you for taking the time to read this far.