I enjoy reading the posts here. Gives me comfort, inspiration and most of all a sense of togetherness. This is the place I come to everyday
I am in my 2nd recurrence started in August 2015. CA 125 at 92. In September got Doxil single agent but after 3 infusions and doubling of CA125 after each infusion Onco changed the chemo. I was put back on carbo/gemzar which I had used for 1st recurrence. After 6 cycles my CA125 remained in the 50s and Onco said I am stable but won't ever be NED. Quite devastated and still wanting to fight more I consulted another Oncologist who suggested adding IV cyclophosphamide (Cytoxan) to gemzar. But it got worse as the CA125 kept doubling instead. Now I am not even stable. With a CA 125 of 263 I started on carbo /taxol.
Last week was to be my 2nd cycle but while the taxol was going in I fainted. Was told i was unconscious due to an allergy reaction. It was very frightening and I am so grateful to the nurses. They saved my life.
Now I am in dilemma. I have no idea what chemo to go on next. Onco suggested Alimta or Abraxane. I have been disappointed so much. I am soooo very tired. Last week the CA125 dropped 20 points which meant perhaps the 1st carbo/taxol worked but whats the point now I can't do taxol anymore.
Is there any suggestions on what to do next. So many chemo regimes all not working. I just don't see any future for me. Would appreciate any info,
Thank you. Hope you all had a lovely happy 4th July. God bless