Experiences with

Cancer and tumours

Hi I m new on hear. I m 37 and was diagnosed with ovarian cancer again just before December 2021. first symptoms I had was fluid build up around my stomach middle body I admitted my self in to A&E were a number of tests were carried out bloods' urine and emergency x rays and CT scans. had to wait for

A few days after Jeff had his first infusion of Keytruda, his eye was droopy. I was concerned about additional brain tumors and called oncology. They brought Jeff in the following day for an appointment. Keytruda is prone to making muscles weak. It generally presents in the eyes, but has the potential

Just found out my partner has a tumor mass on his kidney! Am deverstated. He cannot believe it, he has been unwell as in losing weight and night sweats and now peeing blood, very upsetting for him. We are seeing the consultant on Tuesday and we hopefully will learn a lot more, eg how big it is, what

Has anyone had experience with a tumor compressing a nerve in the spinal cord, causing a symptom, then getting that nerve to work again? In January of this year a tumor in my spine compressed a nerve that caused me to lose my ability to walk. I was wondering if anyone had a suggestion on what to

Morning all, good news post I think! Had over the phone appointment with gynaecologist yesterday and after being told the cancer was in my lymph, womb and cervix all biopsies have come back clear🥳 I have it in the ovary fallopian tube and peritoneal but I will take that as good news!!! Seeing chemo

Anyone on the waiting to see a gastroenterologist (under nhs). I know it can take up to 18 weeks but my anxiety is through the roof. I have had abdominal pains with changes in my bowel movements. Gp ran some tests and turns out I have very low faecal elastase. I am going crazy thinking about cancer and

Hi - me again - in a mild state of panic. My brother had a lung drain assessment this morning- his cough is horrific & he’s in a lot of pain in his chest. His drain was blocked & they’ve removed it as the tear appears to have mended. He starts his chemotherapy on Monday - the doctor he’s seen has more

I finished six months of paclitaxol in Feb. CA125 was 50. Recent bloods show a rise to 250. Oncologist sending me for a scan as I have symptoms. I am allergic to carboplatin and cisplatin . What other options are there for ovarian cancer?. I am brca negative. So worried. Xxx

I am on azathioprine for GPA, which is currently in remission, Urologist wants to take me off these for a few days to carry out a biopsy on my prostate, I am nervous about stopping my immune suppressant as it may lead to the GPA becoming active again. Has anyone had a similar experience and how did it

Hi all, well I think I know what the answer will be/should be.. So my husband with Alcoholic decompensated cirrhosis who has been dry now well over a month (well done him x) But has now been getting the Heineken 0.0 beers which are actually 0.05 ABV. Sooooooo not completely ethanol free are they! He

Gents, My bio says it all. Some bad luck recently. I failed what may be the hottest immunotherapy therapy trial in the world (the “BiTE protocol) but then again half the men on the trial see no benefit and the scientists don’t know why, yet. If anything I and a fellow patient feel like the immunotherapy

Good Morning All , I started my Eligard ( 6 month )on Dec.9 2021, Zytiga ,(250mg ) Prednisone ( 5 mg) on a low fat breakfast on Feb. 1 2022. My Testosterone is at 9ng/dl . My PSA was at 4.19 on Dec. 2021 . My primary dx was gleason 4+3 downgraded to 3+4 by John Hopkins . I had Sbrt , 5 sessions on 2016

I completed my first 5K race today - race for life. The atmosphere was beautiful and moving. Seeing the names of everyone people were running for was emotional and uniting. I was running for my colleague who has recently been diagnosed with breast cancer, and for my friends and VRBs who are also sadly

I am starting radiation on my breast on next month. I need to know has anyone suffered fatigue and pain while doing radiation treatment?

I am struggling getting a positive diagnosis for GCA. I have PMR therefore when GCA symptoms flared I upped my Prednisolone dose to 60mgs. So far I have had negative ultrasounds and left temple artery biopsy. Although the biopsy showed medial calcific sclerosis. My Rheumatologist recommended I

Hello I have recently (28 April 2022) had a CT scan with contrast to check for evidence of disease following my diagnosis of ovarian cancer and endometrial cancer in November 2021. The purpose of the CT scan was an end of treatment scan before moving me onto three monthly monitoring with blood tests

Hi everyone, Since my last post, my dad was recovering from treatment and doing really well. He’s recently been struggling with headaches and nausea so yesterday night I took him to A&E. they’ve confirmed his cancer has returned in the lungs and progressed to the brain. Appears there are a few mets

I am a 70 y/o , diagnosed with Intermediate Grade Prostate Cancer in April 2021. Biopsy showed one Gleason 8 (4+4), one 7 (4+3) and the rest were mostly 6 s and 7s (3+4). After much reading I opted to go the natural healing route; I spent two weeks in Baja Mexico doing modified Gerson Therapy

Hi everyone - we're just starting out on this journey & trying to stay calm. My brother is 61 - under investigation since January - in that time it just feels like every 2 weeks or so his situation gets worse. He has a 5 cms tumor in his left lung - his lung collapsed and that's how we found out he had

Men are strange beasties. We have to always appear strong and to keep our emotion in check. Our doctors diagnose and treat our cancer, but cannot know its emotional toll on us. Our family offers sympathy and concern, but they too do not understand the emotion toll our cancer has on us. It’s this website