Experiences with

Cancer and tumours

I’m in a clinical trial at Hopkins and I’ve just I had my second dosing of the lutetium. I was identified as being “avid’ and therefore a good candidate for this treatment. My PSA was doubling every month and a half. I got off DoxyTaxol in November 2020 and my PSA went from 28 to 90 in March. The second

The article focuses on NOTCH1 (and also -2 and -4 as these are involved in CLL) both mutated and activated forms as applicable. I refer to these collectively as NOTCH. The article includes among other things how NOTCH can point to limited effectiveness of ibrutinib (once you start treatment), on how

A personalized cancer vaccine developed with the help of a Mount Sinai computational platform raised no safety concerns and showed potential benefit in patients with different cancers, including lung and bladder, that have a high risk of recurrence, according to results from an investigator-initiated

Hi. Looking for some advice. I completed 6 cycles of chemo (carbo, taxol plus avastin) in early October with a CA125 of 16 (op was in July). I have continued with Avastin. My scan in mid Jan was okay but my blood test last week shows my CA125 is now 23. I know this is within normal levels, I still

Hello, very thankful for any help in deciphering anything from this results that my father got back today! His doctor said it was unclear. Genomic Signatures Blood Tumor Mutational Burden - 3 Muts/Mb Microsatellite status - MSI-High Not Detected Tumor Fraction - Cannot Be Determined Gene Alterations

I have just been diagnosed with breast cancer and was wondering about other peoples experiences dealing with Lupus and cancer?

So I had a PET scan this week's and yesterday I got my results! After only 4 months on Ibrance, faslodex and xgeva and 10 rounds of radiation my tumours in my sternum, spine and ribs are inactive! My oncologist said it's this best result he's had for such a short time! To say I'm pleased is a huge understatement

Hello All, Would you please give your opinions on the proper ADT duration for me? Gleason 4+5=9, diagnosed in Fall 2019 at age 57. As far as they could tell from MRI and Cat scans, it's confined to the prostate with no distant nor local metastasis. Treated with external beam followed by brachytherapy

Hello, everyone For anyone who wasn't able to attend one of our online sessions, or if you were there and would like to watch it again, we have recordings of some of our webinars available to watch at https://www.ovacome.org.uk/webinar-recordings The recordings available are: Managing stress and anxiety

Hi everyone, my name is Susie, I hope you are all doing well. I must share with you all the how saddened I am every time I hear someone has ovarian or breast cancer. Within a few years two very close friends have been diagnosed with breast cancer. Sitting with them and trying to encourage them to

Hi everyone, I am a healthy 23 year old. I was finally diagnosed with a 4.5cm acoustic neuroma in October 2020 and had it removed in November. The operation was amazing and the surgeons successfully removed 100% of the tumour, keeping all facial nerves in tact. I did however lose my hearing on the left

Hello, how are we all? Last week I had the first infusion of my second line treatment following scans last month which showed brain involvement and slight progression in the liver. The infusion took 90 minutes with it being the first one and then I had to

Using samples of small cell lung tumours, a research team led by biologist Dr Silvia von Karstedt has discovered two new ways to induce tumour cell death. One of two subsets of tumour cells can be targeted by activating ferroptosis: iron-dependent cell death caused by oxidative stress. In the second

I was hoping for one of the clinical trials that would best suit my husbands cdk12 mutation. However he was put on Lynparza. Can anyone share your experience with this drug as far as side effects and if it works pretty well? The Zytiga stopped working after only 5 months of being on it. 😩😩💔

Morning ladies. Has anyone had any experience of the Rotterdam regimen? I was told last week that my cancer is terminal and this is the best option to give me as long as possible. Obviously devastated but I’m determined to fight as long as I can, especially for my 10 year old daughter. I was only diagnosed

My latest PET scan showed no evidence of metastatic disease, but I still have my tumor and it had an uptake of 4.1 which my doctor was not concerned about. She was very happy with my results. I have been on Ibrance and letrozole for 4 years. Does anyone still have their tumor? I was stage 4 at initial

“Priming the pump” seems to be worth investigating if you have a DNA repair gene mutation ( BRCA2, ATM etc.) This was highlighted in a previous post but this article includes the NCT trial number which takes it to the next level https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7585736/

My husband has been diagnosed with lung cancer at a very advanced stage which is also in his chest and lymph nodes diagnosed late February and been told there is no cure he is currently receiving 12 days of radiotherapy in to his gullet which is definitely taking its toll on him. With a bone scan also

I know this subject has come up before, but I can't find answers to my questions in any prior threads. Short background: I have Stage 4 CSPC. Met on upper spine. No diagnosed lymph node involvement. Leuprolide and abiraterone + prednisone for 2 years with most all the usual ADT SEs and PSA < 0.1 so

I’ve notice that when I eat a lot of red drinks like Dr Pepper cherry or eat bacon or ground beef etc I feel idk I see blood in my stool. When I wipe it isn’t there. There was a time it burn like knifes and then I wipe it was blood. I was schedule for a colonoscopy very nervous about it in a way. But