Posts - NRAS | HealthUnlocked

NRAS

36,695 members • 45,320 posts

All posts for September 2020

Not feeling so great 😢

Since been diagnosed Seropositive RA in 2016 and coeliac disease in 2017 I completely changed my diet 100% thought I’d get back to normal feeling better with...

Since been diagnosed Seropositive RA in 2016 and coeliac disease in 2017 I compl...

Pamelah5

•4 years ago

25 Replies

Sulfalazine saga!

I haven't been on for awhile as I am feeling quite exhausted with the journey of RA so far. I was eventually seen at the hospital but did not see my...

I haven't been on for awhile as I am feeling quite exhausted with the journey of...

Furpaws

•4 years ago

12 Replies

Rituximab and Methotrexate

Who takes this together please as apparently it works better together?

-Mii

•4 years ago

16 Replies

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CRP tests

Hi, How often do you have CRP tested when you get your regular bloods done? Up until January mine was done with every MTX monitoring blood test (3 monthly) but...

Hi, How often do you have CRP tested when you get your regular bloods done? Up u...

Ali_H

•4 years ago

21 Replies

OMG hydroxychloroquine

... is a treatment for systemic scleroderma.

Brychni

•4 years ago

15 Replies

this from Versus Arhritis

How is systemic sclerosis likely to affect me? Systemic sclerosis affects everyone differently, so it’s hard to say how it might affect you. This is a...

How is systemic sclerosis likely to affect me? Systemic sclerosis affects everyo...

Brychni

•4 years ago

3 Replies

usual state of fingers!

and here is my nice normal left hand fingers which have only recently also started going white but still not as bad as the right. Also my right when not...

and here is my nice normal left hand fingers which have only recently also start...

Brychni

•4 years ago

13 Replies

RD/PsA or sclerodactyly part 2!

These are mu fingers (and toes) with even the slightest temperature drop

Brychni

•4 years ago

6 Replies

RA/PsA or sclerodactyly

this is my occasional swelling - white finger pics to follow!

Brychni

•4 years ago

1 Reply

Has anyone here been misdiagnosed?

Anyone told they had RA/PsA and then told it was something else?

Brychni

•4 years ago

61 Replies

NRAS Live with Vicky Foxcroft, Shadow Minister for Disabled People on 8 Sept at 7pm

We are privileged to be joined by Vicky Foxcroft, Shadow Minister for Disabled People on Tuesday 8 September. She will be speaking with NRAS National Patient...

We are privileged to be joined by Vicky Foxcroft, Shadow Minister for Disabled P...

Anita-NRAS

Partner•4 years ago

Be the first to reply

Impact on Rheumatology Care as a result of COVID-19 Survey by UCL

Researchers at University College London (UCL) are keen to hear from patients attending rheumatology clinics across the UK about how their care has been...

Researchers at University College London (UCL) are keen to hear from patients at...

Anita-NRAS

Partner•4 years ago

Be the first to reply

Sarilumab/kevzara

Hi just had my second injection last night. My thigh is so red and itchy I have taken anti histamine and having to put ice on the injection site. I have had...

Hi just had my second injection last night. My thigh is so red and itchy I have...

sabrejan

•4 years ago

11 Replies

Expected wait for injection, am I being impatient ?

I'm currently on no medication for my newly diagnosed arthritis, tried sulfasalazine and had mild allergic reaction so that was stopped, tried MTX tablets and...

I'm currently on no medication for my newly diagnosed arthritis, tried sulfasala...

Marionfromhappydays

•4 years ago

43 Replies

Methotrexate feeling nauseous even thinking of it

Anyone ever experienced this. I was on the injection form and I take it on a Thursday it got to be that even going to the cupboard I kept it in the smell of...

Anyone ever experienced this. I was on the injection form and I take it on a Thu...

Smurf808

•4 years ago

20 Replies

RA Awareness Week Facebook Live Sessions

We're excited to announce that we'll be hosting 5 NRAS Live sessions over RA Awareness Week! Join us on Facebook Live on Wednesday 9 September at 6:30pm. Ailsa...

We're excited to announce that we'll be hosting 5 NRAS Live sessions over RA Awa...

Anita-NRAS

Partner•4 years ago

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Can’t imagine ever feeling well again

Dear friends It’s been three weeks since my last post where I’d hoped to be shot in the shoulders to relieve me of this pain. My physio insisted it be put...

Dear friends It’s been three weeks since my last post where I’d hoped to be sho...

Piglet007

•4 years ago

67 Replies

Oh to 'play hockey and trip the light fantastic' can't even even open a water bottle!

Wouldnt it be marvellous to have someone invent easier ways to open tins, water bottles, wine bottles, basically everything with a lid! Even kitchen sprays...

Wouldnt it be marvellous to have someone invent easier ways to open tins, water...

Jaxine

•4 years ago

36 Replies

Steroid injection

Had this yesterday. The pain in my right foot is not as bad but everywhere else is the same if not worse. Got achy wrists and ankles. I do however, have a...

Had this yesterday. The pain in my right foot is not as bad but everywhere else...

Brychni

•4 years ago

7 Replies

Amoxicillin and methotrexate

Hi everyone I cant seem to get through to my rheumy at the moment but thought I would just ask anyway, I have been on amoxicillin for dental work and finish...

Hi everyone I cant seem to get through to my rheumy at the moment but thought I ...

Frankiefocus

•4 years ago

13 Replies

Is this normal

Not been diagnosed but throat last night felt like it was on fire and now can hardly talk. Called 111 but could not help, symmetrical pain on feet,...

Not been diagnosed but throat last night felt like it was on fire and now can ha...

Ivor13

•4 years ago

14 Replies

Had a reply to my referral...in tears

So I finally had a letter from Rheumatology saying if I hadn’t heard from them today to call. I just did that and I’m now in tears. They told me they’d sent a...

So I finally had a letter from Rheumatology saying if I hadn’t heard from them t...

Haz58

•4 years ago

59 Replies

Me and sulfasalazine

So I went back on Sulfa 3 weeks ago after 2 weeks off it as too many side effects but decided after the nurse call from hell to re try it. The past 3 weeks...

So I went back on Sulfa 3 weeks ago after 2 weeks off it as too many side effect...

Hidden

•4 years ago

19 Replies

Severe muscle ache after MTX

I have had MTX injections for 18 months with very few side effects. I missed 2 injections due to taking antibiotics and restarted yesterday morning. Last night...

I have had MTX injections for 18 months with very few side effects. I missed 2 i...

mhlmom

•4 years ago

2 Replies

Last chance to book free RA Awareness Week well-being sessions!

RA Awareness Week kicks off in 5 days! Registrations for our free RAAW well-being sessions close tomorrow at 10am so head over to our website to book your...

RA Awareness Week kicks off in 5 days! Registrations for our free RAAW well-bein...

Anita-NRAS

Partner•4 years ago

5 Replies

MTX

Well it seemed that mtx was not suitable for me I suppose. By the 5th week, my teeth and mouth were in so much pain that I wasn't even able to eat and not to...

Well it seemed that mtx was not suitable for me I suppose. By the 5th week, my t...

marvalusxoxo

•4 years ago

15 Replies

PIP

Just had an hour and a half over the phone PIP assessment. It was hard work! Six to eight weeks to find out decision. Why is everything so difficult?!

Just had an hour and a half over the phone PIP assessment. It was hard work! Six...

Hopefulfuture

•4 years ago

29 Replies

Raging but all is hunky dory!

I finally got an appointment to see my consultant yesterday ( albeit a new consultant) this exchange took place in the radiology room whilst having my hands...

I finally got an appointment to see my consultant yesterday ( albeit a new consu...

Jaxine

•4 years ago

26 Replies

Biologics

I have been hearing lots of people have been moved from methotrexate to biologics & new diagnosed people are put on biologics as first choice meds... I’m not...

I have been hearing lots of people have been moved from methotrexate to biologi...

Jukie21

•4 years ago

3 Replies

thumbelina isn't dancing.

hello! I'm having real trouble with my hands these days. the aspirin isn't doing what it used to, and my other pain relief isn't keeping a lid on it. does...

hello! I'm having real trouble with my hands these days. the aspirin isn't doing...

hazmatrec

•4 years ago

5 Replies

Posts - NRAS | HealthUnlocked

NRAS

All posts for September 2020

Not feeling so great 😢

Sulfalazine saga!

Rituximab and Methotrexate

CRP tests

OMG hydroxychloroquine

this from Versus Arhritis

usual state of fingers!

RD/PsA or sclerodactyly part 2!

RA/PsA or sclerodactyly

Has anyone here been misdiagnosed?

NRAS Live with Vicky Foxcroft, Shadow Minister for Disabled People on 8 Sept at 7pm

Impact on Rheumatology Care as a result of COVID-19 Survey by UCL

Sarilumab/kevzara

Expected wait for injection, am I being impatient ?

Methotrexate feeling nauseous even thinking of it

RA Awareness Week Facebook Live Sessions

Can’t imagine ever feeling well again

Oh to 'play hockey and trip the light fantastic' can't even even open a water bottle!

Steroid injection

Amoxicillin and methotrexate

Is this normal

Had a reply to my referral...in tears

Me and sulfasalazine

Severe muscle ache after MTX

Last chance to book free RA Awareness Week well-being sessions!

MTX

PIP

Raging but all is hunky dory!

Biologics

thumbelina isn't dancing.

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