usual state of fingers!: and here is my nice normal... - NRAS

NRAS

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usual state of fingers!

Brychni profile image
13 Replies

and here is my nice normal left hand fingers which have only recently also started going white but still not as bad as the right. Also my right when not swollen or puffy, but you can see the index and middle fingers are 'bigger' and have been getting gradually bigger for about 5 years.

Little fingers on both sides have tender and slightly enlarged joints which sometimes go a bit red.

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Brychni profile image
Brychni
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13 Replies
AgedCrone profile image
AgedCrone

I bet a lot on here would be thrilled to have hands that look as normal as yours do in the photo.

Talk to your nurse & try to get things sorted out ...you need to know if you really should be starting Mtx.

Brychni profile image
Brychni in reply to AgedCrone

exactly - they don't look bad do they? the swelling has only happened a few times. they do feel weak but I am still able to do things - although it is getting harder.

Soundofmusic52 profile image
Soundofmusic52

Nice hands I am to embarrassed to show mine stay safe 😷

KittyJ profile image
KittyJ in reply to Soundofmusic52

Me too, I’m always shocked to see my hands when I look in the mirror. Wouldn’t inflict that on anyone intentionally 😊

Angjoplin profile image
Angjoplin in reply to Soundofmusic52

I once had my nails done and the lady asked if she could take a picture for facebook. I said are you sure you've looked at my hands properly. She looked at my hands and then looked sheepish. The picture never made it onto facebook. Lol.

Plumcrumble profile image
Plumcrumble in reply to Angjoplin

So sorry that happened, we're not all perfect, sometimes I forget how bad my hands look, until someone stares at them, but I can still use them, that's what I tell myself 😔😁

Plumcrumble profile image
Plumcrumble in reply to Soundofmusic52

Same here 😉😢

Neonkittie17 profile image
Neonkittie17 in reply to Soundofmusic52

Me too, my middle fingers are awful and on my right hand all fingers have drifted. Don’t stop me doing anything, but my nice long straight fingers are long gone!

Brychni profile image
Brychni in reply to Neonkittie17

Hi Neonkittie - is it mainly just the right hand? Has it been years or did it happen quite quickly? x

Neonkittie17 profile image
Neonkittie17 in reply to Brychni

They deteriorated badly in seven weeks when I couldn’t get in for an infusion of Rtx in 2015. They had been slowly drifting in the right hand for about ten years, wear and tear, but I am a printmaker and over-used them so wasn’t surprised. The middle ones are totally wonky. A boutonnière and swan neck. Those were the result of the delayed infusion and came on very quickly. You don’t appear on the photo to have visible OA damage and I do hope you stay that way. I’m sorry if they are painful at the moment. If it helps, my fingers were fine until about 2005 which was ten years after RA diagnosis, then the slow drift with some fingers on the right hand. The Rtx has prevented any further/fresh damage since 2015. x

Brychni profile image
Brychni in reply to Neonkittie17

Neonkittie - I am trying to uplaod my 'knuckles collage' !! but don't think I can do that in a reply message. I'll post it seperately, anyway it's not huge but you can see the redness and the yellow bump under the skin. At times it's unbelievably painful and I get an identical pain in my foot same joint , second tow. It was what made me accept the steroid injection. Weirdly I can feel the stinging in my neck and near my ears.

It has come up quickly, a matter of weeks and although there is no visible bump or redness on the other hand, I can feel tenderness in that joint too.

Looking at the pictures I can see that the other joints are going the same way. I though it was a classic sign of OA?

Neonkittie17 profile image
Neonkittie17 in reply to Brychni

OA by itself doesn’t tend to make joints red and swollen I didn’t think and not in my case. RA is more likely to make tender, hot, red, swollen joints and that’s how like started in both lots of fingers and toes. It subsided when RA was under control. Then over the years it’s been up and down.

Neonkittie17 profile image
Neonkittie17 in reply to Brychni

I saw it last night but my phone was playing up so couldn’t respond to you. Will do so under the photos. x

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