My brother was diagnosed with antisynthetase syndrome end of may. This was after going into respiratory failure and spend 7 weeks in intensive care and many tests to diagnose the problem. Does anyone else suffer from this condition? would be great to have contact with someone. I am at the moment awaiting tests to see if I am a carrier. At the moment I suffer from muscle pains which comes and goes and can vary in severity. This has been going on for last 3 years. As a family we feel isolated as not a lot seems to known about it in my area where we live.
I hope there is someone out there that can help