Two participants in the trial on the U.S. site were told what their dosages were. One received 3mg and one 10mg. Wondering if those involved in the U.K. trials have been told. I know some of you noticed some improvement so would be interesting to know what you were given.
BYM 338 dosage shared: Two participants in the... - Myositis UK
BYM 338 dosage shared
Written by
bon-bon
To view profiles and participate in discussions please or .
4 Replies
•
Hi, really good to see you here, unfortunately I don't have any info on trials but will watch out for replies. Best wishes
Bon Bon I was on the trial at Salford and haven't been informed what dosage I was on. Am due to see my Neurologist in June so will ask him then. Any news and I will post it on here.
David T
Not what you're looking for?
You may also like...
Anyone get calcinosis?
I'm still VERY far from getting a diagnosis (thank you, NHS) and I'd have given up long since if it...
Can my GP help with tests?
I have a rheumatologist's referral, which will likely take 6 months. When it was made, it was...
Could I have dermatomyositis?
Firstly let me apologise for the length of this. I know it's not a good idea to ask for diagnoses...
Newbie here.
Hi, I'm Ian. Sorry for this long post. Just found out today after a 7+ yr journey of trying to...
Dermatomyositis
Hello I was diagnosed with Dermatomyositis in 2018 and still believe I’m not receiving the right...