Hello, I’ve just been in hospital for a lupus flare followed by a few days out then back in for a week with a kidney infection.
I’ve been so filled with drugs (pulse IV steroids, strong IV antibiotics and oral antibiotics) that I shouldn’t be having symptoms but I do - pain, rash, fever, extreme fatigue etc.
Trying to work out whether this is a lupus flare or the infection has started again or a mixture of both as it obviously is completely opposite in terms of treatment/ withdrawal of treatment and my GP wants me back in hospital which I just can’t face when I don’t think there’s anything they can do so thought some of you might have had similar please?
My urine was clear at the end of hospital and clear on my cystoscopy last thurs but yesterday was cloudy again with lots of white pieces floating in it. Does anyone know what these are please or what it means? I don’t think white blood cells would be visible? Pus? Epithelial cells?
Since October I’ve had very weird urine, sometimes complete blood, sometimes tests show lots of red and white cells, sometimes protein, sometimes epithelial cells, only once an infection. Urologist said could be inflammation from the lupus or damage from the methotrexate (rheumy says not) or could also be lupus kidney issues (aside from the kidney infection) but blood pressure low and blood results - except low phosphate and low complement - don’t show any sign of kidney involvement and think would be unusual to get kidney involvement so many years after having lupus and kidneys being ok (and dsDNA -ve which is often more related to kidneys)
Any ideas on any of it please or any one had white bits in urine and got some answers themselves as to the meaning?
Thank you! X