I'd like some advice please in preparation for my next Gp visit.
I have APS, MS, Pernicious Anaemia and a few other related things. I also have Lupus 'Like' syndrome.
I think I have SLE, but my blood tests so far have not shown it. I am on 400mg Hydroxychloroquine for photosensitivity and joint pain. I had started to develop the butterfly rash when I was put on Hydroxychloroquine. Now it's more like brown pigmentation, although the sun makes it prickle still.
A couple of months ago I thought I had a UTI, my Gp tested and said no blood but some protein, so she put me on antibiotics. Then a little while later I had a lot of blood in my urine. It happened on two occasions, and I had a cystoscopy and ultrasound of my kidneys. One kidney was a little larger than the other but otherwise nothing to be seen. The radiographer said he couldn't tell me how my kidneys were working, but that there were no tumours etc. The cystoscopy was clear.
Over the last week or so I've noticed a strong smell to my urine, and a foamy appearance. I'm not dehydrated and the colour is fine. I have an achy, tenderness in my low back on the right side.
Does this sound like a kidney issue? Does it sound like a Lupus related kidney issue?
My feet and lower legs feel like balloons - I suppose it could be the heat, but I don't think they've been like this in heat before.
I am going to speak to my Gp tomorrow, but any advice in the meantime would be appreciated.
It was about four years ago I saw Professor D'Cruz, and he said it was Lupus Like syndrome that I have.
Many thanks for any advice. x