Anyone had trouble with infections in the gut, ga... - LUPUS UK

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Anyone had trouble with infections in the gut, gallbladder and liver? Is it part of the sle.

crankyme profile image
6 Replies

I have been given a course of antibiotics and anti spasmodics to try and settle the pains and my g.p has taken more blood samples to check my lft and white cells and says if i start being sick or have too much pain to get straight to hospital.

what he didnt tell me was whether the tummy troubles were anything to do with my sle as i know it can attack anywhere in your body more commonly the kidneys and joints.

this is really worrying me as i dont know whats happening inside.

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crankyme profile image
crankyme
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6 Replies
Purpletop profile image
Purpletop

Infection is more likely in the stomach but gallbladder and liver are more prone to inflammation, not infection. When you say 'sle attack' you're talking about inflammation, hence the medication usually given for sle having an anti-inflammatory effect. It is these meds that by their nature reduce the resistance to germs and trigger infection.

Yours sounds more like an unrelated infection, although why he's giving you antibiotics for pain, I don't know. Hasn't he told you why you would get sick and get increased pain?

crankyme profile image
crankyme in reply toPurpletop

Might be to do with the fact that my poo is bright yellow and watery,sorry for being so blunt but only way i can explain why he gave me antibiotics. 500mg three times a day so must suspect something as this is quite a high dose.

thankyoufor the advice.

.

permanentgrowingpain profile image
permanentgrowingpain in reply tocrankyme

hi im in the process of being diagose with lupus

i also have gut issues

right hand pain on eating which gets worse as day goes on

yelllow pooh like you sometimes explosivel sometimes i eat and have to rush to the loo as contents all want out at once if you get my meaning .

omerazole doesnt do much sometimes apears to worsen pain

im waiting to see gastroenterologist and ruematologist .

i did have gastris and helipylori and thats clear now not sure if gastritis has healed

doctor does seem to know whatsup

re the lupus they thought i had fybromyalgia but it turned out lupus so god knows what the stomach issue is will let you know

i take slippery elm 3 timesa day that heelps the pain

Achilleas profile image
Achilleas

I recently got diagnosed with lupus, practically a month ago. During my staying in the hospital i was regularly monitored for infections of other organs - lupus attacked only my skin. The thing is that i was given antibiotics which can actually increase liver function to high numbers lft being the one i remember which reached up to 521 as a value with normal being up to 55.

The doctors told me it could be the antibiotics or the antiviral i was given at some point. I got tummy burn feeling but i think it was down to my liver numbers being so high.

You better talk to your doctor since trust me, i was admitted for 4.5 weeks and the doctors could never pin point something and be 100% sure.

If fluxloxacillin is the antibiotic ask the GP because it can cause diarrhoea, stomach pain or rushes.

In my understanding rather than talking to a GP about it, find a lupus expert doctor or nurse and chat with them and they will advice you better.

Lupus affects each and everyone of us differently as well as the medication given. As an example i can give you my self which i had only severe skin burns resulting from lupus (discoid) without any joint pains or any other infections to other organs.

A bit lengthy but i hope it works.

DonnyJM profile image
DonnyJM

My Mum who has had Lupus daignosed for 43 years had real problems with her Gall bladder being attacked by SLE last year and it now means she has to really watch what she eats and also can't eat a lot - she is slowly shrinking bit by bit.

So yes I beleive the Gall bladder can be affected by SLE.

crankyme profile image
crankyme in reply toDonnyJM

Just been back to my g.p with pains yet again he says he wants to send me for another ultrasound as there was so much inflamation in my liver and gallbladder that he couldnt see my pancreas or around the general area to find out whats going on. He says he also suspects that i have irritable bowel syndrome now to add to the list, as if its not enough having to cope with lupus and problems with my blood and lungs.

needless to say i am as sick as a chip.

evrrything seems to have happened so quickly.

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