personality changes

[Scotchgal]

does anyone feel personality changes like total change of mood everything

[Sunshine634]

Yes very much so. I often feel like I don't recognise myself anymore. I find my brain fog makes me less confident to talk, where I used to tell a joke, I'll try and remember it or find it and then the moment has passed, or ill try and think of what to say and by the time i find it the moment has passed.

I feel withdrawn in that sense, I have said to my husband at times I feel like I have lost my personality. Not all the time but a lot of them time I'd rather sit alone and not bother people.

I find it hard that having my health issues is the biggest thing going on in my life so I often talk about it but others find it depressing so it's easier to say nothing resulting again in feeling withdrawn.

[Scotchgal in reply to Sunshine634]

I was recently told my family cant be bothered with me not even invited to family meal

[Sunshine634 in reply to Scotchgal]

Sorry this has happened to you, maybe try and find a local lupus support group that you can meet people who share your struggles and can offer you support and comfort x

[Scotchgal in reply to Sunshine634]

I get that feeling lost personality

[posthinking01]

Reply to Sunshine634 as well - hi there -I am a Lupus sufferer diagnosed back in the late 1990's and was in a terrible state - but to cut a long story short my thyroid was involved and Lupus and the thyroid can be linked - it was the brain fog that I noticed you were talking about and that can be thyroid. Make sure your thyroid levels are checked but not just TSH but the actual levels of T4 ad T3. Also wanting to be on your own is another symptom. Take care and keep well.

[Scotchgal in reply to posthinking01]

I feel like my whole personality changes

[Scotchgal in reply to posthinking01]

Is the personality change brain fog?

[MrsMouseSJ]

Sadly, yes. When things are really tough physically I just don't think there is anything left 'in the pot ' for other stuff. I either withdraw into myself and often feel down and without confidence, or I can become very irritable and short tempered.

[posthinking01 in reply to MrsMouseSJ]

Hi are you on steroids to help with the Lupus ?

[MrsMouseSJ in reply to posthinking01]

Hello, no I'm on hydroxychloroquine. But I have a complex medical history, so there are quite a number of things which could be affecting me.

[posthinking01 in reply to MrsMouseSJ]

Whilst we are all terrified of steroids and the exhaustion possibly indicates adrenal gland issues then steroids can give the energy the body needs - I have many health problems but I take steroids which keeps the inflammation at bay.

[Scotchgal in reply to posthinking01]

I was on a lot drips in arms etc when lupus hit kidneys

[Cal48]

absolutely I have rheumatoid and meds don’t help

[posthinking01 in reply to Cal48]

So sorry to hear that.

[Scotchgal]

not meds or that, does anyone else feel the affects of lupus in brain

[Scotchgal]

I stopped all meds due to Covid

[Scotchgal]

I mean the affects of lupus on the brain I’m 43 diagnosed 26 had kidney disease I believe it affects brain now

[posthinking01]

Have you tried Vitamin B complex which will help - can recommend Natures Best products.