This is the first time iv posted about lupus.
I was diagnosed with Sjogrens about 6 years ago and it vanished within months but recently about 3 months ago I was so unwell with joint pains and fever like symptoms but without the temperature and had some
Chest discomfort went to the doc and was told just to relax and have a blood test I was then told I needed to see a rheumatologist and straight away I knew it was lupus it all came back with how I felt with Sjogrens but this time so much worse. I have to wait 2 months for an app.
Dr put me onto hydroxychloroquine and I started to get more unwell like I had a constant fever, more aches. I developed a dry mouth and eyes. My mouth and throat are sore. I had chest pain which am awaiting to hear if its plueritis or not. I now have a rash little red spots over my neck, arm and shoulders which itch bad. I spoke to the rheumy nurse today and she's told me to stop the meds and will get back to me tomorrow.
I feel alone and confused I have no idea who to turn to the GP try's to help but has no clue about lupus and they hardly have any apps to see me, the hospital just see me as a number. I feel like no one cares. I have 2 girls to take care of bless my hubby is a gem but it's hard feeling ill all the time, I try to be positive but something new happens to me every few days and I'm stuck as I don't know what's going on. I just feel like an emotional reck. Iv tried to see if there is any local lupus group I can try but can't find anything!!
I'm sorry I just had to share it with someone who may understand what I am going through xxx