Hello everyone I haven't posted on here in a couple of months just thought I'd pop by and say hello .Reason that I haven't posted is that I was seen at the lupus clinic by rheumatologist her eyes in Northern Ireland a cple of months ago .She seemed pretty certain I didn't have lupus despite me testing positive on antis DNA test .When asked about this she stated that some people in the population just have those positives in the blood ?
I do have reynauds also and three telegantasia on my face which is Apparntly another' reason why I was suspected of having lupus .Chronic heartburn reflux which hasn't got better despite increasing differnt medication and a lot of skin trouble blepharitis ,psoriasis and hair loss etc .
She done afew other referrrals to neurophysiology ,another edonscopy ,wrote to neurologist who has treated me in the past Asking about issues with my legs etc .
I came away with more questions than answers to be honest and completely disillusioned as to what the hell has caused all these new conditions if it's not a connective tissue disease as she stated !
I did not have any of those problems five ten years ago and am at a loss to understand were I turn now !
My reynauds is getting unbearable at this time of year and with me working outside in a job I'm not really physically fit for anymore the cold hands and frozen toes as making it difficult to even walk !Keep getting tingling in feet and have a bit of a pin prick tiny spot on big toe today which is abit painful !
How do those on here with reynauds manage ?
I suppose I don't belong on this forum now but would like to thank some of the people here for their help and support the last few months over the summer and into October when I was expecting to be diagnosed with lupus .I wish you all the very best on this forum there are some great people on here and in particular I want to thank the lovely women who spoke to me on the phone for far too long very kind to have listened and gave me advice and support .
God bless you all and have a lovely Christmas all you people on this forum