I met with the oncologist yesterday having been discharged from hospital. Whilst in hospital the oncologist informed me that the pluerodesis operation had not been a success, my lung had filled with fluid again, there was growth and the next step maybe to take me off maintenance chemotherapy and try me on Tarceva.
It has been decided that my lung is to be drained again and either a drain to be put into my lung enabling a nurse to drain it as and when required or for a second attempt at the pluerodesis operation. I had expected the 'growth' to be in my current tumour, however, I was not prepared to be told that I have two new tumours in my lung. The oncologist believes that my body has become accustomed to my current treatment of Avastin and Pemetrexed which is why further tumours have grown. He has said he will do everything possible to prolong my life and I am willing to try or do anything.
Due to my age and fitness levels the oncologist feels I will be able to cope with another form of chemotherapy using Gemcitabine and Carboplatin.
I am now waiting for the telephone to ring so that the wheels can be set in motion. I cannot explain how afraid I am. There are so many questions spinning in my head, what if my body is now accustomed to all chemotheraphy? The tumours weren't there at my last scan in November so they have clearly grown at speed.
My husband and daughter are amazing, I know I have to be strong but am finding it terribly difficult to stay positive and find myself crying endlessly.
Is there anyone who is in a similar situation that can give me some positive news? I just need something positive to hold onto, some form of hope x
Everything that can go wrong is!
New to the forum- in a complete spin
Worried and feeling sad
