Experiences with

Maintenance chemotherapy

Unfortunately I ran into some considerable mental health difficulties shortly after beginning my maintenance chemotherapy; which flew under the radar as I seemed to be compelled to make poor decisions, against the advice of everybody.

Started Chemotherapy again after Avastin didn’t work as maintenance. Disappointing especially as Olaparib also didn’t work for me in 2023. After being mostly bald for the past two years (was told Caelyx wouldn’t lose my hair!).

chemotherapy every 3 weeks and trying to be as positive as possible and make the most of each day despite everything that's happened to me.

Hi all, I'm grateful for a place to ask a few questions of those dealing with MPN. I was recently diagnosed after seeing my doctor for burning feet and tight sock feeling periodically over the past two years. Naproxen was controlling that to a point. I have been on Hydroxy/500mg day for one week

I get breathless often. It's worse getting out of bed in morning. It takes me a good 30 mins to get settled before I can relax in chair. I rarely sleep(knowingly). I keep taking fast short breaths to try to recover. The cardiologist knows about this as does as waiting for TAVI. Recently diagnosed with

I’m 48 and was diagnosed last year with advanced metastatic prostate cancer, affecting my lymph nodes, pelvic bones, and ribs. I finished chemo with Docetaxel in December. Given my age, I’m aiming for an aggressive treatment approach and am currently exploring radiation to the prostate and pelvic bones

https://www.fda.gov/drugs/resources-information-approved-drugs/fda-expands-pluvictos-metastatic-castration-resistant-prostate-cancer-indication They based their "expanded-use" approval on the PSMAfore trial. In addition to mCRPC, men had to: • have tried one ARPi (Zytiga, Xtandi, Erleada or Nubeqa

I am writing for my sister who is reluctant to communicate with anything other than facebook. Hopefully she will see the value in this forum. I have been subscribed to the advanced prostate cancer forum and have found it very useful. My sister was having all sorts of symptoms including postural orthostatic

can anyone help with a little advice? I am 7 1/2 years post surgery, chemo and pelvic radiation. I have suddenly developed some bleeding which may be PV. I have many prd symptoms but this has never been one of them. anyone else experienced this? really missing Jo’s trust right now 😢

I had diagnosis of HGS3b in May 2020 after hysterectomy and no chemotherapy due to bladder injury. Had chemo 2021 for reoccurance after i had bladder surgery due to fistula. Had surgery last year for 2nd reoccurance near pancreas and 6 months later on ct scan showed few lymph nodes which have grown

Hi all, This is my first post here. My 66 year old father was diagnosed with metastatic PCa in April 2024. Initial PSA was 35.6, Gleason 5+4. A month later, PSMA-PET showed widespread mets in the tissues surrounding his prostate, including bones and lymph nodes. He did [i]not[/i] have mets in his head

We are in Ontario Canada and my husband was on the wait list for the newly government funded Pluvicto., which my husband's oncologist recommended as the next treatment since all other options have been exhausted. Request was put in over 6 weeks ago and we hadn't heard anything from the hospital and

Others may have posted something similar, but for all of us with advanced prostate cancer it is such a mental roller coaster and it is exhausting. First I’ll I’m very thankful for the treatments that are out there and for all of the people/ warriors that have gone before us and done clinical trials

Hello! Always thinking of each of you and hope you are well. My dad’s advanced prostate cancer is now prostate cancer lung metastasis because it has moved to his lungs. He will undergo chemo in 2 weeks. Just wondering if there is anyone else with this diagnosis or knows someone that has this same diagnosis

I received my first round of chemo (docetaxel) on 3/19 followed by a white blood cell stimuli (Neulasta) on 3/20. It has now been one week and I still feel like I've been hit by a truck. The bone pain from the Neulasta was severe but passed after a few days. The fatigue, however, doesn't seem to want

Strategies to Resensitize CRPC to AR-Targeted Therapies Castration-resistant prostate cancer (CRPC) often remains driven by the androgen receptor (AR) pathway despite resistance to standard AR-targeted treatments. Numerous strategies – from drugs and combinations to hormonal cycling and lifestyle changes

Hi This is a question for the gents who have been through an SCT - whilst I quite expect to lose my head hair as a result of the chemo, should I expect to lose facial hair as well? I’ve had a beard for a number of years, so much so that I don’t think my 8 year old daughter would recognise me without

Just wanted to update you all about where I am with my CLL/MZL which transformed into DLBCL (still not sure if it’s Richters but definitely close) in January, 2025. I had 10 radiation treatments focused on the axial lump that was biopsied and which determined I had DLBCL, then 3 lympho depleting treatments

To be honest, I hate to talk about this, I hope RIPTACs, immune therapies and new radiotherapies will be available soon (and the early clinical studies are really positive!), but let's recap the actual SOC as suggested by the latest big trials (I wish there were data for darolutamide as well). At the

Hello Everyone, I was previously on the PSMAdditions trial since January 2023 with 6th and final infusion in August 2023. My PSA was undetectable until several months ago. I had a PET scan in October that showed new lesion in my acetabulum. So I had external radiation to the area but it has spread