Hello..My Mom (48 years) had a stroke on Oct 30- 2018 on the right side of the brain and weakness on her left part of the body. By this time, Aspirin was started for her.
On Dec 25-2018, her haemoglobin was dropped down to6 and platelets Wer 33000. She got diagnosed with Deep Vein Thrombosis of right limb which was transformed into Pulmonary Embolism as she complained of Leg Pain. Treatment started was Low Molecular Heparin Injections for 5 days and Acitrom(4 mg) Tablets. INR was in the range 3-3.5. Haemoglobin restored was 9-10.5 and Platelets 2 Lakhs with a Progress of Partial Recanalization.
On January 25-2019, she had a clot in right limb but another location (second Deep Vein Thrombosis). Treatment was again the same-Low Molecular Heparin Injections for 5 days and Acitrom (4 mg) Tablets.
On February 6-2019, she suffered from Acute Chronic Subdural Hematoma (Brain Hemorrhage) in the left region, with the midline shift 13 mm towards right, Haemoglobin-5, INR more than 10. Treatment was Burr Hole Drainage of left FTP SDH along with FFP and Blood Transfusion. Acitrom and Aspirin stopped.
On February 9- 2019, she suffered from Acute Interior wall Myocardial Infarction. Treatment was- Coronary Intervention (POBA) to distal LAD, Aspirin started along with Acitrom (2mg). INR varying between 1-3 hence Acitrom given accordingly from 1mg-2mg.
On February 19-2019, she suffered from Hematuria. Treatment was- Blood Thinners were stopped, Plasma Transfusion was given.
On February 21-2019, she showed positive for APLA test. By this time also, she had clots present in Left leg as well. Treatment was- Plasma Transfusion was given, Clexane 0.6 mg Injections started twice a day (Continued till now) and Rituximab 500 ml given for 4 weeks, after that Rituximab stopped. Cryoprecipitate started, 4-6 units for every 21 days (Continued till now).
Now, 4 days before, Clexane Injections were stopped to check that whether any other anticoagulant in Tablet form could work for her. Hence, Rivaroxaban Tablets were given, 15 mg twice a day. But after 3 days(6 Tablets consumption), she again developed a fresh clot in brain and had a mild stroke on the right side of the brain, weakness on her left part of the body, again.
Right now, Those Tablets are no more given and Clexane Injections started because Doctor says this anticoagulant is working for her as she had no complications with Clexane. I guess, Rivaroxaban didn't work for her.
After this Fresh Stroke, she vomits everyday after consumption of Milk and Lentils diluted soup given through Riley's Tube. Doctor suspects Lactose Intolerance. Hence I have decided not to give her Milk and Lentils/Pulses soup from tomorrow.
She has Lost her memory since her Brain Hemorrhage( From 2 months) and is On Riley's Tube( Liquid Feeding Tube which goes through Nose to Stomach directly), On Diapers and Urinary Catheter, Bedridden, Speech Loss, Irritable( Screams, Weeps, Shouts a lot).
Progress: Clots from legs are resolving slowly (Doppler Scans), Midline Shift of Brain has become 5mm( MRI and CT Scans), Speaks very few irrelevant words, Walks 2-3 Footsteps, Bit Understands what we speak or try to express, Oral consumption of fruit juices and liquids ( 2-3 teaspoons).
From 5 months, Hospital has become my home. I and my family members are disturbed. Can't c her like this...
Will she ever recover? Recognize me?
When will she start performing her basic activities?
Could she possibly be suffering from Lactose Intolerance?
What possible other sort of tests could be done? For any sort of diagnosis and confirmation?
Please Reply. Will be grateful.
Thank-you...
Trouble getting INR Stable
My wife and APS - Looking for help
Unstable INR 
