I am lupus anticoagulant positive.
Take Warfarin, Asprin and at INR 3 or less Clexane too. My INR fluctuates wildly one week between 13.9 and 2.5.
I have Lupus SLE, Sjogrens Syndrome and Fibromyalgua well. (Thyroid additional tests are fine)
I also take Azathioprine and prednisone;7.5mg) plus’s other meds.
I understand once Warfarin is commenced the antibody tests can’t be relied upon
I have an excellent excellent haematologist whom I have faith in however she thinks I am now triple positive
Anyone else changed from one to three antibody positive?
She also asked me to think about stopping Warfarin for a while (min 6 weeks) and inject Clexane twice a day in its place; in hope to reset my body and stop the constant sea-saw effect I’ve been getting with Warfarin
She informed me that the other anticoagulant drugs are not showing that APS patients are protected adequately.
My questions are:
Has anyone else injected Clexane twice daily?
How did you get on?
How did you cope with the bruises?
Did you feel better on Clexane as opposed Warfarin?
And the previously asked question: Can I now be triple positive?
Please explain the effects this will have/ is having on me
Thank you Woo x 💋