I have a letter from my specialist an... - Fibromyalgia Acti...

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I have a letter from my specialist and dont understand it, just wondered if any body can shed some light on it please.

jazher profile image
16 Replies

I have a appointment on moday but its doing my head in. I know none of you are doctors but i am hoping someone else will know something.

This is my letter.

This patients serum immunoglobulins and complement were normal.

Adjusted calcium was on the low side. Thyroid peroxidase antibodies were positive and she is significantly deficient in vitamin d with a level of only 15. I would recommend that she go on vitamin d supplementation as per your local guidelines.

She is also positive for gastric parietal cell antibodies (often present with tpo antibodies).

She may be at risk at developing vitamin b12deficiancy.

I have underactive thyroid along with fibro, cfs/me and hypermobility syndrome and asthma.

I understand if nobody knows what all this is, i just thought i would ask as monday is far away for me lol.

thanks for reading kel xxx

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16 Replies
jazher profile image
jazher

Thankyou chris,

I know its a lot to take in and find out, my minds buzzing lol.

I always have things on a weekend and monday seems ages away to find out lol.

thanx again kel xxx

What are the normal levels for the vit D please?

Thanks Lynn.

Butterfly54 profile image
Butterfly54

Hi jazer I`m not an exsepert by any means but the bit about gastro parietel antibodies,very much reminds me of when I was told after blood test that I had an ulcer due to pilori bacti and was put on an enourmouse dose of antibiotics

for a week.Hard going but it did the trick.

Are you having stomach problems you dont say

Hugs Butterfly:_)

jazher profile image
jazher in reply toButterfly54

Hi butterfly,

I have acid reflux quite alot but just thought it was part and parcel of fibro.

Ifeel sick quite abit too.

I do actually have flares quite often where i have a horrible deep sickly heavy pain in my stomach, but i thought this was my ribs playing up, maybe it was actually my stomach.

Also lol (you set me thinking now) I cant eat a big meal nomore as it hurts my stomach, does this sound familiar or is it just fibro?

thankyou

kel xxxx

Butterfly54 profile image
Butterfly54

Hi Lynn,just a quick one about Sjogrens DR gave me carbomer for my eyes and oh what relief.Also this time understood it lol.

I had vit b12 injections when in my 20`s I kept feeling really poorly and pins and needls in face and hands.

She said my blood had too many white blood cells and it was as if I had lukemia but it wasn`t,I am having this again.And also have to take care in sun as get blisters.not heat rash.

Hugs Butterfly:-)

jazher profile image
jazher

Thankyou chris,

What sort of tablets do you take for the low calcium? is it just a suppliment?

I have problems for years and nobody else has picked any of this up with all the bloods i have in the past.

Thankyou again. :)

kel xxx

jazher profile image
jazher

Thankyou lynn,

Its so good for answers, before this website i would of been sat there worrying lol, i am a person who likes answers lol.

I do hope i see a difference as i just keep getting worse, but now i understand why.

Thankyou so much and i will let you know what she says on monday. :)

kel xxx

jazher profile image
jazher

Thankyou chris again lol.

I will let you know what she says on monday, at least i wont just look like i am moaning now as i have something to show why i feel like c**p lol.

kel xxx

Butterfly54 profile image
Butterfly54

yes hun just like i was.you need the blood test for pillori bactori

hugs jayne xxxx

jazher profile image
jazher in reply toButterfly54

Thankyou, i will mention to my gp on monday.

This site is still suprising me and helping me. I have only just noticed that there is a thyroid community on here where i can ask questions. I am well chuffed. :)

xxxx

jazher profile image
jazher

Thankyou lynn,

I better book a two hour slot for my gp on monday lol. She will definatly be kicking me out the door lol.

kel xxx

Well thats alot totake in and sorry i really cannot comment on all that bless you but it looks like you in good hands on here and got some great and comforting advice which is lovely isnt it good luck for monday you will be well up on all your symptons and treatments you will prob know more than the doctor lol love to you diddle x

jazher profile image
jazher in reply to

Thankyou diddle :)

I will let you all know what my doc says. I think i do know more than she will. lol. It is good that we have so much more info on these conditions, all through this excellent site, i just couldnt be without you lot now. :)

kel xxx

MissKittycat profile image
MissKittycat

I'm seeing my doctor in a week - being a vegetarian I'm wondering if a lot of my levels are low too.... will get checked out x

Hope you get sorted sweetheart!

jazher profile image
jazher in reply toMissKittycat

Thankyou misskittycat,

I would ask for all bloods to checked hun.

I would of proberbly not of been as bad as i am if they had found all this out years ago. I just hope when i start all my new tablets i might get back to the way i was, I am hoping for a miricle by the way lol.

I will let you all know how i get on tomorrow.

kel xxx

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