Pinning some hope on Vit D

[Glenys]

Hi

Just went to docs feeling crap and had my usual plea for more liver tests (as I think I have AMA negative PBC - it's complicated, and in a blog elsewhere I think). So she tells me that although some of my initial liver tests were raised and I have to have them again, my vitamin D levels were dangerously low!

Now I have read elsewhere that VitD depletion mimics fibro, so it will be interesting to see how much energy I get back over the next few months. I thought I was having a pretty long flare-up and was getting worried as to where it was going.

So I have 3 outcomes now:

1. It gets no better

2. It returns to how it was a few months ago - standard yeuchiness

3. Totally no symptoms

Watch this space. If anyone has a Vitamin D story/outcome it would be good to hear from you..

XGlenys

[Maladjusted]

I'm currently taking prescription pure Vitamin D. It helps a lot, but it doesn't make the Fibro go away

[jillylin]

Same here

[Glenys]

Thanks for that folks lol (winks)

As I thought. I might be pinning too much hope on a miraculous cure, but I am hoping that it will at least lesson the "flare-up" that I thought I was having.

I have been literally forgetting words (which I know is a fibro symptom, but in the 20 or so years I have had fibro I have never had this as a problem), and my sleep is even worse than it was.

Going through the change too!!!!!!!!!!!!!!!!!!!!!!!!!!! That's got to be a triple whammy, eh? And I won't be the only one. Why does the dreaded F coincide with the big M?

Huggles

Glenys

[Hidden]

Hi Glenys

I don't know what dose you are on, but I was told by the doc at the pain clinic that 5000 I.u. Per day is now recommended. You can get these capsules from amazon.

Hope this helps

x

[Glenys]

Hi KazF

The bombs he gave me are 20,000 each!! (X1 a week) and the others are 4000 x2 a day with calcium. Luckily I pay a yearly cost for my prescriptions which is fixed no matter what, so I don't have to buy them at all. However I ave to make sure I renew the prescription every month with my other stuff, and that will be a challenge for me

Thanks for the advise though. I pay for a lot of my other meds, ie 5HTP, magnesium and Vit B, and have considered amazon instead of Holland and Barratt, so do you know a good supplier on amazon please?

XG

[Kirby]

Unfortunatelty the Vit D3 and Calcium I was prescribed had seide-effects and I was unable to take them. Now my GP surgery will no longer pay for Vit D tests

I've been taking some from the health shop but hasn't helped much. The best source of Vitamin D though by far is from the sun and I can honestly say that is the best thing for me as long as it is strong enough. I am much less fatigued when we have a bit of sun but as long as it is dry and not humid conditions!