Hot and cold sweats

[Africanmonkey]

Folks just a quickie, does anyone know of hot and cold sweats with fibromyalgia as I am at work now but the pain is bad and I am getting hot and cold sweats

[Uellow22]

Hi,Oh my, oh my!! Yes continually suffer with this issue and I am pretty sure I posted the same question on the forum some time ago.

Of course there is always hormones as a consideration but I think fibro folks suffer regardless of hormonal influances.

I take my mini fan everywhere with me no matter what season and 9/10 need a window open in the car...air, air is vital.

Hope this helps you not feel alone.

Perhaps go home if you feel it's all too much.

Best thoughts from me to you.

[Molliesmamma]

hi africanmonkey, yes I am afraid this is yet another present from FM. I was diagnosed around 6 months ago though had been having symptoms for a couple of years before, one being the hot and cold issues- apparently it’s due to being unable to regulate our body temp and it goes quite haywire 🙈. I have terrible problems with it freezing one minute and roasting the next it’s a real pain especially during the night- the fan is on and off all night I’m shaking with cold then sweating- my poor husband having to put up with poor sleep because of it too 😢

[Africanmonkey in reply to Molliesmamma]

Many thanks for this as I have a bad cold just now and still have to go to work to care for Thomas but now he has caught it so he is not in a good mood. He has sent us home but have to come back when he calls. My wife is the same as your husband putting up with me except she falls asleep fast and snores loud so I struggle to get to sleep

[Losing_sleep_xoxo in reply to Africanmonkey]

Bless your heart, I suffer terribly with over heating I am never cold even if it's freezing and snowing I am always burning hot 24/7 I am bed bound due to many health problems aswell as fibro and I have a big fan on me at all times, my skin is like ive been sunburnt all over I hate that we all suffer so much

Sending my love to you all xx

[Africanmonkey in reply to Losing_sleep_xoxo]

Oh I feel so sorry for you as I care for a man who is bed ridden 24 7 unless I get him out of bed. He has Frederick's ataxia and his legs are locked upwards in the fetal position. He has just caught the cold that my wife and I have. He insists we come in even when we really shouldn't as he will not have anyone else in

[Losing_sleep_xoxo in reply to Africanmonkey]

Aww that just goes to show how supportive you are and how much you care for him, it really is no life being bed bound, I am literally just existing not living just suffering daily with debilitating pain that can't be managed at all I've been on opioids for 15 years so my body is now resistant You sound like an amazing compassionate carer to go and care for him even when you are not well yourself

Take care of yourself x

[Africanmonkey in reply to Losing_sleep_xoxo]

Thank you for the reply as it means a lot to me as I feel nobody really bothers about me. I just turn up do what he wants me to do even if it is not the right way as its how he wants it done. My wife was the main carer but now I am and know nothing really about caring, just a kind heart

[Losing_sleep_xoxo in reply to Africanmonkey]

Well it sounds like you are doing your absolute best and like I said you're thinking of others even though you are suffering yourself i totally get that feeling of nobody bothers it's almost as if people get tired of hearing how bad we feel when we reach out for support that after a while we just smile say I'm fine then suffer in silence. We are all here though and actually understand what living with this is like and how much it takes from you not just physically but mentally too.

Keep strong but remember how you feel is just as important my friend

[rainbowqueen18 in reply to Losing_sleep_xoxo]

Yes constant sweats..change clothes two three times a day..wet through to my undies n night clothes it’s so debilitating..won’t give me anything for it it’s as though they don’t recognise it as a problem so get on with it…scalps so sore as head is burning n hairs wet through constantly..it’s so so hard to mange a life while dripping in sweat all day n night…

[Losing_sleep_xoxo in reply to rainbowqueen18]

Omg yes that is me exactly the same I feel so alone as most people are the opposite and are always cold, it makes me feel so awful constantly sweating and feeling like you have severe sunburn all the time My doctor has offered no help either just says I need to exercise more when I am crippled in pain and bed bound!

You have my complete sympathy I know exactly how you feel x

[denny_the_wench]

yup - especially if you are on Duloxetine

They got so bad for me that I had to give this drug up. I'm well passed the menopause (Endometriosis at 30 meant full hysterectomy) so I can't even blame that anymore 🥵🥵

[Losing_sleep_xoxo in reply to denny_the_wench]

I have endometriosis and adenomyosis too that aswell as having fibro on top is just awful I am forever burning hot like I have a permanent temperature so I totally know how you feel x

[Tillytrots]

Hi I suffer terrible with the night sweats I wake up soaking wet next I can be iceycold I have bought some of those pyjamas that wick the sweat away from you I hope they work I am 73 years old it takes me back when I went through the menopause at the moment I am going through terrible flair ups as mine is weather effective I am just not getting a break my G P has referred me to a pain clinic so I just waiting for an appointment as nothing seems to work I whould like to know if any one has been to a pain clinic and do they help because I don't want waist my time if they are no good sorry to go on but I hope any of are fibro friend can help bye for know sending fibro hugs to all 🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗Xx

[Africanmonkey in reply to Tillytrots]

Thanks for the Hugs as well needed just now. I have been to the pain clinic but it wasn't very helpful for me as they said things that I couldn't do. Now it's via phone and again not much use. But I have Fog and worry about it as I forget about things I did yesterday. Hope someone has a good report for you

[Elaine200756 in reply to Africanmonkey]

Aww, I'm so sorry for what you are suffering. I was just wondering re the brain fog. I suffered from bad brain fog to the point there were days I couldn't even think and I felt stupid and inferior to others around me. But I recently increased my water intake to twice what it was and I am a lot better. So, I make sure to have my 8 glasses of fluids a day. I include other drinks like tonic water, tea and coffee. But as for water, I would only have 2 glasses of water a day and now it's 4 or 5.

I was thinking that if something so simple helps you it's worth a shot. I don't particularly like water so I will put a slice or 2 of lemon in my glass. You can use other fruits too. Hope this helps xx 🤗

[Africanmonkey in reply to Elaine200756]

Many thanks for this as I will give it a go

[WF2k]

I just put mine down to the menopause lol.

[Elaine200756 in reply to WF2k]

🤣🤣

[rainbowqueen18 in reply to WF2k]

Yes I thought menopause was issue but I’ve had this for ten years now n it’s no less now than first menopause ..fibro must be culprit..

[Debsdelight72]

I was just about to ask you if you might be menopausal, But remembered,

Your a man!!

My Hubby and I have our own rooms now,Only because we both suffer from a lot of illnesses and need to sleep (don't we all)

I had suffered from the hot and cold spells for years but didn't think it was Fibro.

Same old,same old let your GP know, The usual stuff that helps keep me cool in the winter, Don't just suffer, There are also lots of other illnesses that have the same symptoms,

Hope you find them soon

Take care Debs

[Africanmonkey in reply to Debsdelight72]

Thanks for this so far we both share the same bed but for how long now I don't know

[Debsdelight72 in reply to Africanmonkey]

Difficult at first, Very difficult but then you find your not fighting over the duvet, You get to spread out and it's nice and quiet.

If you have pets that can sleep with you that's nice 🐱🐶🐶🦉🦦🐿️🐘🦒The more the merrier I say, Although some people may have different views,

🦚 You can all ways have date night 😄😄

[Matrix]

oh yes daily all the time I’m either boiling needing fan on or so cold I need a hot water bottle.Its up and down but constant .🥰🥰

[Africanmonkey in reply to Matrix]

Thanks

[Tipton11a]

Yes I thought this was menopause GP wouldn't give me HRT as iv had breast cancer I was so desperate I wasn't sleeping. eventually my GP gave me an antidepressant called paroxetine. It's only low dose but for me it was a miracle. I still have the odd one during the day, I don't wake up all sweaty knowing I will be freezing in 5 minutes. Fibromyalgia is hard to live with but getting a great night's sleep is amazing. I did suffer with headaches as a side effect. Hope this helps as I know we are all different. Take care my friend.