HiHas anyone else since being diagnosed with CFS or fibromyalgia,found there speech or language field being somewhat slurred ? Or find it difficult at times to remember the correct words to place or put into a conversation etc.
Have read up on this & the fact is true.
Real world 🌍 people what are your views on this please.
Kindest Regards
It is one of the core symptoms of fibro. Coffee issues / fibro fog
Can not abide coffee ☕ yuck 🤢
that was meant to be cognitive issues ........ (autocorrect on phone)
To late, the community has spoken and the thread has done its thing 😂
For the sake of the record I hate coffee and lose my thread in sentences and forget names.
If Fibromyalgia causes me to lose my love of coffee then that will be my breaking point.
hahaha!!
Afraid so, forgetting mid sentence what you're actually talking about or the name of the person you're talking to that you've known for years. Good old fibro fog is just another joy!
When it happens with people you know it's not so bad, I just tell them my woolly head's bad, but when it happens in the middle of meetings with people you don't know so well it's pretty awful, they must think you're a bit simple 🙄
There's lots of little things you can add to help like bullet points to keep you on track, take notes on everything, set reminders etc..
The slurred speech though, not so much. I find the more tired I am then the worse my speech is and my voice is weak too, sometimes losing it altogether.
Also have a terribly dry mouth, throat & nose so constantly drink water & chew gum or either my tongue is stuck to the roof of my mouth or my lips attached to my teeth, not so helpful for talking 😂
The list just keeps on growing doesn't it. 😔
yes but this can be easily linked to fatigue which as we know it a big part of Fibro.
I know people who do not have CFS / Fibro who at times have this issue, and they often say it’s tiredness or just general “mind overload”
I suppose if symptoms persist or get worse it’s worth mentioning it to a GP but we all suffer from mind fog which can affect how our words come out on occasions.
L
I agree. I think almost everyone who suffers with long term illness or chronic pain not just fibro suffer with a foggy mind. And like you say tiredness /exhaustion is likely to be the culprit for many.
I also think isolation can play a big part with forgetfulness with things like fibro. For many myself included. We don't have the same interaction on a daily basis that allows for conversation .
So when we are in a situation of having to use our brain in response to thought or questions its like it needs a kick start lol Anxiety for many can also be a major reason we can't respond or remember things fast enough. This is just a personal answer and how it effects me xx
Hello, I have both conditions and differently the fibro fog at times, my family and friends are now getting used too me not finishing my sentences or moving on too another topic with out finishing up what I was talking about in the 1st place. I hate the smell of tea 😫think I am the only one I know that does not drink tea , but we all like different things don’t we .
Hi
I hate the smell of coffee ☕ & the dreadful smell of subway food outlets 😂.
I'm getting quite annoyed at my speech etc & it's getting to me 😞
Trying to get a head scan arranged by my medical support worker who I have on speed dial 😂.
Was electrocuted back in 1996 no fault of my own & died ☠️ CPR was done then I collapsed back in mmmm the early 2000,s & spent a year in a wheelchair 😞
Top of my spine & bottom part is inoperable 😞.
So I'm wondering if this is connected to the speech issues through progressive changes in my body.
What a horrible thing to have happened! I don’t have any advice, but just wanted you to know that we sympathize with you. 🌻
ThankyouI hate even mentioning it 😔
Thankyou for replying back, you really went threw it then, you sound like you are doing all you can too get this head scan arranged, surely if doctor s have your medical history they really should be supporting you with this. Yes horrid smells that stay with you , for me it was on an aeroplane the smell of the food coming round in trays 😞yuck.
I Often smell odd things like petrol fumes,old chip fat 😂 or home use chemicals I don't keep or use etc.
My GP,s are usually I'm sorry to say 😔.
Still reckon the smell of the Subway Food Chain is like a old dry cleaners on the blink 😂
I've been to hell & back most definitely
for me it is the smell of bbq's in the summer. I used to live opposite to a farm, and the main road from uttoxeter where I lived and Stafford where I worked had another 3 or 4 farms along it and the farm buildings were close to the road and when foot and mouth outbreak came, and the army were brought in to kill the animals, even though they weren't infected. they put the bodies in piles close to the road and it smelt like they used petrol to light them, the black smoke and the acrid smell from these animals was horrendous and ever since I cant stand the smell of bbqing even though it didn't smell anything like roast beef,
🤢 nasty
Yes smells seem too stay with us. Cannot wait too smell things outside in the Spring. I ve potted up a Hyacinth indoor , my husband hates it 🤫but I love it x
Hi. This is probably one of the most frustrating things. In daily life I build buses and have huge difficulties in remembering people's names and what basic things are called. To the point I look like a complete idiot. Mines less like a fog but a complete blank.
I'm like that like that & it's so annoying by far.
I once was very outgoing, but now am quiet and reserved due to the fact I can't even think of simple words in the middle of a conversation. I, too, feel like an idiot when this happens. I'm worried what's going to happen if it gets worse!
Don't go thinking your a idiot please it's the effect of fibromyalgia.I feel alone in the fibro zone.
Not a nice place.
If you want to chat I'm here
I went through a stage where everything smelt like pepperoni. Coffee smelt like it the most. Made that morning cup interesting.
Hi yes, I have this frequenrly where I cannot string a coherent sentence together which is really embarrassing at work. I have to describe things as well lime white box in kitchen for fridge etc. Its horrible.
I'm the same,I sometimes struggle trying to get my point across at work. And I'll be speaking to a customer on the phone and forget their name which makes it difficult to write my notes up.even if I ask them twice I still forget! I also forget place names.
Same here actually it's so frustrating indeed really hate being like this & in pain also
It is really hard, I usually try laugh it off, oh fibro brain is at it again.
I personally hate this issue dearly etc.
Hi I feel for you and I have the same issues and my family have told me the same that I mumble and slur my speech and call things by the wrong name and forget what I am saying you are not alone
i totally agree with your comment same here. To be followed by we think you are in the early stages of dementia , so I talked to my doctor. She was. Great she said tell your family you don’t have dementia but I have a very pressured job and to help me more and i need a holiday 😂 .
I struggle with my words, I forget names of things and often say the wrong word for it. I can be in the middle of a conversation and I can't get my words out I slur and stutter trying to say a word
yes, I am like that at times, I just end up saying “that person, that item, that place etc”.
My family understands it now, but fiercely frustrating.
Anyone who suffers with this has my sympathy, it’s so frustrating.
I went through a phase where all I smelled were black plastic bags. Now it's custard 😝 I used to love custard now so strong. I feel sick.I'm on Steroids at the moment and I can smell properly, my chest is clearer I'm going to miss them when I'm off them.
I hope everyone feels better soon hugs 🤗
Absolutey! I was an English teacher with a wide and varied vocabulary. Four years of fibro has turned me into a bumbling buffoon, unable to remember the simplest of words. Heartbreaking .
Hello Thankyou for making my day so happy by what you have just written here.
I knew fibromyalgia was to blame for this issue etc.
It really has turned my world upside down & made me feel so bad
Yes, but having a tooth out (not one you can see) seems to have affected my speech sometimes (I also catch myself drooling!) My words disappear, often in the middle of a conversation, even when they've been there just before, but I put that down to stress and being 80. I think this is why I prefer to write, because I can always come back and insert the correct word when it comes back to me. You don't say how old you are; if you are quite a bit younger, it's probably down to stress/having too much on your mind. Incidentally, they tell you "Sorry, it's fibromyalgia; nothing we can really do". Well, it's down to us. We have to listen to our bodies and move them in the way that will stretch out the painful areas.
What's his Bob, thingamyjig, the whatsit, that dewbury thingy... you know what I mean?! Definitely have this problem!! Even when I was writing this, I couldn't remember half of the made up words I use to pack my sentences with 🤣🤣!!!It is one of the most frustrating parts. I'm a bright, intelligent person and sound like a dumbass the vast majority of the time. You know what though? Just go with it. The more you try and search for the word you can't find, the further out of reach it becomes and the more frustrated you'll get. Certainly what I've found anyway. Who cares if people think you're daft or not all there? You know you are and you know the reasons for your fog. Nobody else needs to. Let them judge it they want. They won't be the people in your life who are worth your time xx
Hi all,
I can't believe I am reading this. I too have these issues but thought I was just losing the plot as I often get told I'm an idiot!!
Do I go back to the doctors if they may help?
Thanks
Sema
It's dreadful beyond words SemaReally hating it totally
yup, my brain is completely fried. The more tired I am/later in the day the harder it is to remember what I was going to say or words. So frustrating for someone that works with clients on a daily basis.
Definitely vocal downfall is fibromyalgia
I am so pleased to read this as I get exactly the same, so nice to know I am not the only one.
Kindest Regards
IFound the connection between fibromyalgia & vocal speech sometime ago
Yes! I lose my thread on conversations.....I thought I'd replied to this when I saw it....I put things in weird places finding days later....forget my sentence midway....names of people/places etc. I get really annoyed with myself as had it for years but got worse in last 12-18months, its like my brain zones out!
Yes -It sa big part of my symptoms and probably one of the most frustrating things!! I have MECFS and FMS along with other things (as per the way!!) And I find I frequently am unable to express or articulate what I want to say, mid sentence! Sometimes I feel really stupid as I cant even put together a simple sentence using daily simple language and nouns. Nouns just disappear in my head ! I care for my 4 autistic - ADHD (teen and young adult kids) and my husband is also Autistic and ADHD. The frustration, confusion and stress it causes in my household now that I am losing my cognitive abilities and speech is massive. As a NT I am supposed to allow them extra time to speak and process etc, but they are neither used to, or realise they now need to, give me the same courtesy and accept that my auditory processing is no longer good either so i need them to slow down and repeat - which really is not understood by them.
Also does Anyone else find they have lost their ability to process their speech or the situation properly - maybe loss of 'filters'? -Like sometimes things come out my mouth and its not want I wanted to or meant to say at all, but its been said and now can not be unsaid!! 😮💨
Yes, yes and yes! Fibro fog, mild cognitive impairment even dyxitra (there is a medical term for difficulty with speech but can’t remember how to say it or spell it).
