Fibromyalgia Action UK
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"Why are answers so hard to come by?" OR "Do I have to be such a complex patient?" and rain, rain, go away

Well, I saw the lady gynecologist. She did not understand why my gastro doc questioned ovarian cancer. [looking for cause of ascites] She barely examined me, no PAP, just digital, not even reaching the area that I believe my ovaries sit. She ordered a few tests including a blood test that is for tumor markers. I'm back to square one.

Then yesterday the heavens let loose a deluge of rain the likes of which we have not seen in years. I thought the rain had stopped and had to run to the pharmacy...joke was on me, rain was not done. I figured well, I'm already out here and wet, might as well pick up a few things at the market. The parking lot was flooded. When I came out of the store there were 30 cars trying to park in a dozen spots that were not under water.

I finally made it home and took a nasty spill on the concrete step outside the front door. Bruised my right arm when I tried to land on the log caddy .

Falling took so much out of me, sent me into a tailspin, I went to my room and slept for 4 hours. Missing my daughter and grandbabies leaving for the weekend. By the way 7/7 was Levi's 2nd birthday.

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I'm so sorry you had a fall. I hope everything settles down soon. I hope the rain has eased off.

I truly hope you get some answers to your other problems. I hope your tests come back normal, I know that this won't help but will rule out ovarian cancer.

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I was hoping you would get some answers not have to wait again for the results of tests.

Sorry you had a fall, unfortunately concrete is very unforgiving so I guess you were really shook up. Hope the rest has done you good and you aren't too battered and bruised.x

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I hope your fall wasn't to bad because it seems you feel it more the next day. Grandbabies birthday hope the little one enjoyed every minute of it🎈 have a good night. Cnris

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Hi my friend

I am so genuinely sorry to read of your fall and I sincerely hope that you recover form this soon. I really am so truyl sorry about your appointment not going well also, and I want to sincerely wish you all the best of luck and please take care of yourself my friend.

All my hopes and dreams for you

Ken

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Hi, I know it's so difficult when we get a gynae problem. I have had numerous ones over the years. Some can be down to fibro, others NOT. I hope you find out what the problem is. Look after yourself whilst recovering from fall, I know they can knock you for six. Feels like if it's not one things it's another.

Love

LaurieLee

X

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Hi LaurieLee [pretty name]

I am still recovering from my fall, lovely black and blue on my upper right arm.

I am having a pelvic ultrasound on Tuesday 9AM [not a fun test at all] but it will provide the best view of ovaries and fallopian tubes.

Wish me luck!

~Sharon

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Good luck Sharon with your test. Make sure you tell them you have fibromyalgia. When exam begins or even before, try to imagine yourself in an idyllic setting. Mine is beach, on sand dunes. Imagine, feeling the sand between your toes and grass. Sounds, you can hear the waves lapping on the beach, sound of seagulls, laughing children. Smells, the lovely smell of sea water and anything else you can think of to take your mind of what they are doing. It rudely helps, I had a tooth removed without being put out. They took my blood pressure about 10-15 times, couldn't find my pulse. Everybody has trouble doing my BP. When they started pulling out tooth, my body was literally shaking from head to toe, never happened before. I realised if it didn't do something drastically they would stop the procedure. It helped me get through it. I also,did it a few days ago when having an MRI on neck, not painful as such but not easy either. It helps to calm your mind and in turn hopefully your body.

x

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Can relate have had V pain for many months. Finally went to gyno & all she did was pap & test me for STDs!! Really? Told her waste $$ & sure Fibros new place of residency. Swear they only run tests know insurance covers. Got no answers!! Im sooo fed up with docs. Have burning mouth syndrome & ENT doc told me I am what docs refer to as a PIA (pain in a--) patient. So relate to you. Paid him $450 for knocking me down & no help. Hang in there - you're not alone & not complex just DESERVE answers : (

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Hi Beezy,

burning mouth syndrome" For real or are you being funny? If it's an actual affliction try popsicles. I had both sides carotid arteries cleaned out, ever since my mouth is constantly dry...popsicles are my saving grace.

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Unfortunately nothing funny about it...very real & diagnosed by Ear Nose & Throat Specialist!! Ya they help but the calories & sugar not ideal 24/7. I found mint or HOT spice helps tame it. I know its burning so why HOT spice? No idea but eating Mexican food one day it helped & knew I was onto something!! Maybe it's the endorphins spicy food brings us? I've had for 1 1/2 years now so used to it. Thanks

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Oh 4got/ well you know the old saying- when it rains it pours : )

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