Hello Everyone. Firstly, let me say a big "thank you" to all of you who left me lovely messages in response to my last blog. They were very much appreciated.
Let me explain where I've been. My sister-in-law Leah had been misdiagnosed last year with IBS and period pains, which turned out to be a very rare form of cancer that had spread to various areas of her body. By the time she got the correct diagnosis, it was pretty much too late. She had several rounds of Chemo, and just before Christmas was told that the tumors were shrinking. Just a few weeks later, she began to deteriorate rapidly and the tumors had in fact spread to other parts of her body.
For a few weeks she was staying with Mum, set up in a hospital bed and the whole family taking care of her. When Burnie (my husband, her brother) wasn't working, we were spending all our time with her, so it felt like we were hardly ever home. Thank goodness for my very good friend Tina for looking after our animals, otherwise it would not have been possible for us to spend so much time with Leah.
After a while, waiting for nurses to bring pain relief to the house was just too much for Leah to cope with, so she moved into a hospice. Once again, the whole family spent as much time with her as possible, Mum hardly leaving her bedside. Finally, in the early hours of Saturday 10th March, Leah passed away peacefully in her sleep. She left behind her 11 year old autistic son Flyn. Her wish was for us to become his legal guardians, and so he is now living with us.
Her funeral on 20th March was a lovely service at a crematorium, followed by a wake where we were looked after extremely well. Flyn was of course very upset during the service but soon regained his composure along with his cousins, and was soon back to his usual self. He seems to have settled in with us pretty well and started a new school last Thursday, where he has already made a friend, despite a few teething problems.
While everything was going on with Leah, and I was busy helping to look after her and support the rest of the family, my FMS symptoms seemed to almost fade into the background. However, once things had calmed down and the stress had faded, boy did my symptoms come back with a vengeance! I had pain and tenderness where I hadn't had any before, and I was in bits. A trip to the doctor confirmed that it was all new symptoms of my FMS coming out as a result of the stress I'd been experiencing over the last few months. His advice - rest as much as possible. Easier said than done when you suddenly find yourself responsible for an 11 year old boy!
For 17 years, Burnie and I have only ever had to worry about ourselves, so you can imagine the enormous change to our lives. On telling Burnie that I was going back to bed the afternoon after seeing the doctor, because I was in so much pain and so tired, he announced that "these kind of days will have to be numbered now we have Flyn". Well, while I can appreciate that he'd been busy all day and I was leaving him to cook dinner (which I wasn't going to be eating), I was disturbed by the fact that he thinks I can just turn off my FMS whenever I feel like it. If that were the case, does he not think I'd have done that a long time ago?!!
It turned out that I had also picked up a nasty cold from my youngest niece, which really had me feeling even more under the weather than usual for a couple of days. I still have a chesty cough even now, but otherwise I'm just my usual FMS self. Then came Burnie's turn to get it. Well, it floored him for almost a week! Is it unkind for me to think to myself 'poetic justice'?!
Anyway, between the two of us, we seem to be managing fairly well having Flyn around. Of course it was a huge relief when he started school, just so we had some peace and quiet! Flyn never stops taking, even in his sleep!!
So now I'm taking the opportunity to reconnect with this community, who have been so supportive of me when I first joined, while Burnie enjoys a lay-in and I've seen Flyn off to school! I hope that you are all doing as well as can be expected and I look forward to catching up with you all again. Hopefully, I will be able to keep in regular contact from now on.
Big hugs to you all.