I feel like a recluse , my M.E is so debilitating and the lidocaine infusions arnt working iam so fed up at the moment its about once a month iam able to go anywhere .
its one problem after another , ive just recently been told I have non celiac gluten sensitivity so I have changed my diet , only have gluten free now . then more tests come back iam vitamin d deficiency I already have b12 injectrions . anyway a lot more health issues keep coming up , iam a strong person but its taken so much from me .
also the stress of waiting PIP tribunal which is now on its 15 week , so should get a date next week , the whole process has been going on since last October , absolute joke !
I hope I haven't gone on too much , just need to speak with others that understand x
sending huge hugs xx
Written by
angib53
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My first ever ESA claim took a total of 18 months of pure stress, anxiety and worry.
Please don't ever apologise for having a moan. We need to have one. I often think it's the next best thing to speaking to someone face to face or on the phone. We at least get it off our chests.
The last few years I seem to be being diagnosed with more and more different conditions.
It does get you down, there is no doubt about that.
Have you called the DWP to enquire when you can expect to hear from them?
Lack of Vitamins D & B12 are very common in Fibro sufferers.
Is it possible for you to invite a friend to see you if you are feeling very alone. You can make it for a limited time in case you are worried you will get too tired.
You're very welcome. I also have ME and know that some days just getting showered and dressed takes all my energy.
I am guessing you have tried pacing yourself?
I often think I am not a strong person, and then I think about what I go through every single day, pain, fatigue and lack of sleep and I guess if I wasn't a strong person I would have buckled by now.
Feeling poorly does not mean we are not strong. We are Fibro Warriors xx
Don't worry it is better out than in as they say. Sometimes one thing seems to come on top of another and it is difficult to cope and take it all in. The wait for assessment seems never ending and we just want it over and done with.
Hope the new diet helps and perhaps if you get the extra B12 you will start to pick up a little.x
Catherine- have you ever been offrered other therapies to help keep you mobile/agile? I use hydrotherapy weekly (I would go evry day if poss) and I have had acunpuncture on hands knees and coccyx. B12 should be given by injection and not from high st shops their stuff is only minute content of the vitamin the rest is additives. IF you are not getting PIP (old DLA) then you should apply, this is given to help you remain independent at home, speak to Janet our benefit advisor on this forum she is a whizz with help.
I get it BB--It went for a whole year like that with me--Dr after Dr and they kept finding stuff and one thing would contradict another-I have a lot odf Dxs- Thru it manyf tears and anger and anxiety---Im assuming PIP is something like our Social Security Disability here in US--That took me 2 years--but I got all the back pay from when I first filed--Had to give attorney 4000 tho--Listen you hang on....you will get thru this--Things are starting to slow down a little for me--and they will for you--I do go to store once a week--but don't go like I used to--I miss shopping and looking pretty--Just don't have the energy but Im working on it and hoping for better times for me and for you Hugs,MmeT
I really am so truly sorry to read of your situation my friend and as some of the others have said, have you ever been offered some therapies like physio or CBT? I have undertaken these and I found that they helped me a great deal. I want to sincerely wish you all the best of luck and please take care of yourself my friend.
I have OT,Pt,a heart specialist,a pulmonary speciailist,a GP,and a therapist to talk too and this site--I have many angels and am so thankful -I will be ok --One day at a time Hugs Mmet
ty for replying , I have tried hydrotherapy , and cbt twice , the cbt helped in a way and they were lovely , I do breathing exercises a lot as I become very anxious at times , especially as I have tried everything and still I stay positive as I can .
I tried lycria and ended up having a anaphylactic reaction and stayed in hospital over night ,
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xx
Had a month from Hell, and today is a day from Hell feel like how much more can I take so here goes I'm going to have a rant from hell.
