Omg what a day I have had :(( - Fibromyalgia Acti...

Fibromyalgia Action UK

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Omg what a day I have had :((

Gilly2111 profile image
10 Replies

Wel I can't believe the day I have had  first I'm in pain with my leg and groin. Then it have this burning head sweat with shaking from head to toe thought I was going to

Pass out I have ad this before but not as bad as it took about 30 minuets t subside 

Phoned the GP again and got appointment tomorrow at 2.50.  Now m.y daughter is going mad that they can?t see me today. I've. Had To stop her from phoning up the GP and going mad with them. If it happens tonight she is going to phone Shrop doc so I hope it doesn't.  Well I've had a very eventful day  and iam absolutely exhausted. So I'm. Going for a lie down. Take care all and by for now x

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Gilly2111
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10 Replies
Deni52 profile image
Deni52

Thinking of you and hoping things settle down for quickly.

Gilly2111 profile image
Gilly2111 in reply toDeni52

ThankYou denI52

Iv been in absolute agony with my legs an pelvis too can't walk at all and ended up back in my wheelchair.. I'm not on no pain meds as nothing works for me only found out last week I have fibro after Drs thinking I have lupus.. Saw my dr an hour ago an he was not arsed one bit! Long story shorted just said I have to deal with it as no other meds he can give me an didn't sign me off work.. I'm only 21 an been struggling since October 2015. I have literally had enough know of the pain every day an Drs not being bothered about me one bit.. 

Gilly2111 profile image
Gilly2111 in reply to

Hi Leanne and iam so sorry that you are going though this at such a young age, it's like some one told me today  gps don't know enough about this illness so they.  Don't know how to treat it. It scares me that the gps. Are not yet fully educated inbox this field. I hope you feel better soon hunny. Take care x

rosewine profile image
rosewine in reply to

Hallo Hidden  .  Could you have one of the Fibromyalgia Action UK information packs sent to him, it can be done anonymously as he might see that there are some alternative treatments that might help you that are not drug related.  It is awful when you are wrongly diagnosed as you feel that you have lost all that time being wrongly treated and are back to square one.x

in reply torosewine

Iv never heard of one of these? How do I request for one? X

TheAuthor profile image
TheAuthor in reply to

Hi Leanne21bull

I have pasted you a link below to the FMA UK medical information pack that we can send to your GP: 

fmauk.org/useful-informatio...

All my hopes and dreams for you

Ken

rosewine profile image
rosewine

Sounds as though you have had one of those days from hell Gilly2111    Hope when you wake up tomorrow you are feeling a little better.  I do wish that the doctors could see us when we are having these terrible flares but often by the time we actually manage to see them they ahve subsided enough that we are not taken seriously.  Let us know how you get on at the doctors.x

TheAuthor profile image
TheAuthor

Hi Gilly2111

I am so genuinely sorry to read that you have had such an awful day, and I sincerely hope that you have a much better day tomorrow. Please take care of yourself.

All my hopes and dreams for you

Ken x

Gilly2111 profile image
Gilly2111

Thankyou to you all for your replys. Take care all x

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