Fibromyalgia Action UK

Does anyone have experience of hyponatraemia (low sodium?)

Hi All

I have fibro, crps and chronic pain plus epilepsy. The meds I take for epilepsy have caused me to have b12 deficiency and now low sodium. Reading about low sodium online is very scary as it waters down your blood (which is happening to me) and if it drops too low can cause coma and death! Gp is monitoring every 2 weeks at mo to ensure it stays stable.

I just wondered if anyone else has had this and if you could put my mind at ease a little?

Gentle hugs

Jayne x

5 Replies

Yes! I am overweight and as I know it will help my activity levels and hence my fibro if I lose weight I am on a diet. I have never looked at my sodium levels before but now find that when I complete a diet sheet I find that the amount of sodium I am taking in is extremely low - I also have low B12 levels and am taking a supplement, also I find that within my normal diet I take in too little potassium.

Do talk with the medics about whether it is worth taking supplements and if so which ones, especially of B12 although sodium levels do need looking at too. See either the GP or specialist!



Hi jaynief

I am so sorry to read that you are suffering in this way and that you are feeling insecure as a result of your diagnosis. I do not endure anything like this but I wanted to wish you all the best of luck with finding the answers that you need and deserve.

All my hopes and dreams for you

Ken x


Thanks both,

I have to have b12 injections every 3 months already.

Fingers crossed my sodium remains stable as I can't find a treatment for this apart from hospital on drip (I hate hospitals lol).

Gentle hugs

Jayne xx


I will keep my fingers crossed for you

Take care

Ken x


hi I also have epilepsy and fibro low sodium and b12 deficiency ...they found with me if i drink only one litre and a half a day in total liquids it keeps mine in a better range still low but not as low as its been I had to have my meds lowered to on my epilepsy they keeping a eye on my fits and sodium all time have monthly blood tests now .....hope you get sorted I no it can be frightening but watching ye liquids does help x

1 like

You may also like...