Does anyone else experience chest hea... - Fibromyalgia Acti...

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Does anyone else experience chest heaviness or possibility of suffocating?

Tjoceans profile image
5 Replies

Mine mostly happens when I lay down, but I feel I can no longer carry my body around. It's all very strange, because I run, but I swam a couple days ago, well waded, and was motion sick and my legs almost buckled when getting out. I'm afraid they will tell me I can't go anymore, because I'm a liability.

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Tjoceans profile image
Tjoceans
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5 Replies
Judithdalston profile image
Judithdalston

swimming is the only exercise I can do as I also have postural hypotension making in a five minute walk a liability, but yes even though I am a good and regular swimmer (5x a week) I sometimes get that odd feeling like I am suddenly in a very heavy wavy sea! One of the areas I often get fibro pain in is my sternum like an elephant, ok a small one, is sitting on it, sometimes between the ribs too… fortunately I can tell it’s the muscles etc and not heart. I am a great believer in trying to exercise, and keep convincing myself it must be doing me some good!

Tjoceans profile image
Tjoceans in reply to Judithdalston

I wonder sometimes if it's something I've eaten, like greasy food. Last night I decided to take some Claritin and that helped and I've been taking a pump of oxygen from one of those canisters you buy at a sports store.Do you ever think about sleeping in a chair or something that doesn't lay all the way down?

It's a scary feeling. Sometimes I think I'm gonna die in my sleep. My chest gets heavy and so hard to breathe. I think sometimes I stop breathing a long time when I sleep and then gasp.

My father had that and then he got dementia. I wonder if that will happen to me. For him it started in his 50s. I'm 46.

What kind of doctor do I see. So far no one believes me. It's been more than a decade.

Judithdalston profile image
Judithdalston in reply to Tjoceans

Have you thought about getting a test for sleep apnoea…the thinking you have stopped breathing might be a link. During Covid, when GPs doing very little I arranged a private 2 day test thru the charity Hope 2 Sleep, so did it within a month or two of applying, but you could get your Gp to refer you too. I have mild, therefore non treatable, SA. No I need to lie down, if I slept propped up I’d never get to sleep I’d get too distracted, as it is I normally don’t get to sleep till 2am ish.

ALKT profile image
ALKT in reply to Tjoceans

possible sleep apnea not sure of spelling should see your gp mention your symptoms and family history . best wishes. did not see the post below /now above this one.

Debsdelight72 profile image
Debsdelight72

Hi Tjoceans

I like the others have suggested with the sleep apnea, Would it be paid for with your insurance? I was having very similar problems like yours, It turns out at night I only use 80% of my oxygen, Now they say I don't need any further treatment,

This makes it a tadge worrying, I try not to think too much about it,

I don't know too much about your countries system when it comes to your health, I hope you get some answers soon

Take care

Debs

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