Anyone heard of POTS, think I've just found a breakthrough

I've been suffering with a strange illness, I thought it could be a number of things. I started treating myself for reactive Hypoglacemia . I did feel better for doing this, also drinking more water and taking salt , a small amount of Himalayan salt each day, symptoms did improve. I'm going for a epileptic test in April after having a chat with a siezure doctor. Whist I was looking up epilepsy I stumbled over this mention of POTs , I was astonished all my symptoms , I then looked at a POTS seizure , mine are like a POTS crossed with epilepsy, then when I looked at the symptoms on more sites,, there is was , that word ,m fibromyalga. Seems I've been doing the correct thing tho. As treatment is,,, salt intake more meals a day,, and water more of it, no wonder they have got better, wow,, it's amazing, are we our own doctors or what,, I'm going to mention it to my doctor tomorrow , I'm so pleased I was beginning to get more worried thinking epilepsy , it also causes the rapid heartrate, which has got better by the way because I can stand now without falling over , I do miss chairs at times tho,,, lol

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  • I find if I don't drink a good amount of water during the day my heartbeat gets faster I have a glass of water and it slows down ...

    VG x

  • Hi very grumpy , nice to hear from you again, my insomnia friend, lol. I've felt great since I started looking after myself more, but it's so interesting what I have found out tonight. I honestly think that fibro has other conditions,, that are labeled as quirks,, that come along and doctors may be getting a few things confused because they just not aware or don't recognise that we are having REAL symptoms of a condition ect,,,

  • Sorry wrong link,, mind fog lol

    en.wikipedia.org/wiki/Postu...

    Think I've got it right this time

  • Hello Jjojay,

    Interesting post as I have had symptoms of Postural Orthostatic Tachycardia Syndrome (POTS) in the past, for more information on POTS see link below

    patient.co.uk/health/postur...

    Please may I say that you may have come to this conclusion and may or may not be correct in your thinking. There is a possibility it may not be POTS and may be a entirely different issue. It is always advisable to discuss any new symptoms with your GP and I am glad you are going to mention these symptoms on your next visit.

    POTS is a form of Dysautonomia which is one of the symptoms of Fibromyalgia.

    Dysautonomia is discussed in the All About Fibro section on the FibroAction website link below

    fibroaction.org/Pages/What-...

    There is a charity called STARS which is for people who experience POTS & other related conditions and this is a link to the website that may be of interest,

    stars.org.uk/

    I hope you get the answers you need soon as it is sometimes exhausting trying to talk to the medical profession as you say.

    Wishing you all the best

    Emma

  • Oh on the list for POTs is mind fog, insomnia sleep disturbance ,, all our other symptoms,, funny that isn't it,

    I kinda get the feeling , of dajavu , I think I've developed dyslexia also , ether that or my brains just too exhausted to spell , well people I'm in my bed now , it's become my best friend, that and my cats. But still wide awake. Just want to add a moan, since I've been on beaterblockers my muscle pain has got worse and my skins got itchy spots I've also developed more fatigue although my racing heartrate has got a load better,, gotta take the side effects to combat the worse.

  • Yes, I had some symptoms of POTS and also NCS when my Fibro was bad.

    Fibro is linked/caused by over-stimulation of the autonomic nervous system, so many Fibro symptoms are related to the autonomic nervous system. Dysautonomia primarily refers to dysfunction of the autonomic control of cardiac factors (pulse, blood pressure).