Vitamin D

Vitamin D

Have you had your Vitamin D checked recently?

Please see Arthritis Research UK recent article which may be of interest;

Interesting fact: ( no FibroAction Hat on )I read somewhere that Lard is high in Vitamin D, some professional chefs say that the introduction of Vegetable Oils & Sunflower oils have reduced this intake which may be causing a deficiency in some people !

So, why not treat yourself to lardy cake if you like it by maybe only a slice now and then ! :) Everything on moderation, a little of what you fancy does you good they say ! :)

Random information on the internet says 100grams contains Lard 2,800 IU which is interesting !

Question time:

How much Vitamin D do you take if any?

What were your levels? Were you prescribed Vit D due to blood results?

Have the levels and your symptoms improved ?

How long have you been taking them?

Are you prescribed Calcium too?

Here's a poll about Vitamin D from a while ago, which may be interesting?

I look forward to your comments

Emma :)

FibroAction Administrator

Last edited by

23 Replies

  • Hi,

    I was prescribed AdCal for three months as my levels were deficient. They then retested me and that was the end of that. It hasn't been monitored since so I have no idea what it's like now. They only got it to just on 'acceptable' levels before they stopped treatment.



  • Hi like bluebell have osteoporosis and together with zolondronic infusions have calcichew D3 forte, like munching on chalk, delightful :o but it must do some good somewhere down the line I hope :-)

    Foggy x

  • Hi Emma

    I take Fultium D3 800 ui after a blood test showed a very low level of vitamin D, in fact he said they couldn't be sure how long I'd been so deficient for :o That was 15 months ago and I am tested regularly along with everything else and know that I am never coming off them.

    I can't say that I noticed much difference to be honest, in the first week or three I felt little less made of wood but that's all. Oh and my fingernails became rock hard :o

    Not sure about my calcium levels though!

    :) xxxsianxxx :)

  • Hi there

    I take a vitamin D one a day tablet and I have been doing this for over a year as I had a blood test that showed my level was quite low.

    Thanks for this.

    Ken x

  • I am exactly the same as you ..... just been put on a tablet a day ......

  • Blood test showed low levels & dr prescribed multi vitamin inc Vit D. I was very sceptical that this would have high enough dose but after 3 months levels up to "normal". Advised to always take multi vits to keep levels up. I have noticed a slight improvement with hip pain and energy levels, but nothing major.

  • Hi Emma

    I was diagnosed with osteopenia last year and put on calichew tablets but they made my IBS bad. When I read the list of ingredients I saw it was packed full of aspartame. Avery helpful pharmacist managed to identify some calcium and vit d tablets that didn't have any in and they're much better, with the added bonus that you don't have to chew them - result! I'm not aware of ever having my vitamin D levels checked but I've noticed a big improvement since taking the tablets. Less pain and virtually no fibro fog - possibly the biggest bonus as it was getting so bad I was fearing early-onset dementia.

  • I'm new to this site, so hello! Is there a correlation between people with fybro and low vitamin D then as when I was first seen by a rheumy by reading was <16! I didn't know the two were linked? I don't really like dairy and don't cook with fat, especially not lard, so I stick to supplements and have vit d injections x

  • Welcome Lipbalmaddict

    Our FibroAction community forum is full of lovely members & volunteers who are happy to share their experiences with each other to help others. You should find the community to be a supportive site where you can talk, ask questions and make friends. Everyone tries to provide the best information they can to help or to point you in the direction to get the best advice.

    Here is a link to another post about Vitamin D with links to the FibroAction website for more information;

    Hope this helps

    Emma :)

    FibroAction Administrator

  • I've suffered a fractured ankle from a tiny twist, and bilateral hip wondering if the vit d played a part reading these posts?!

  • Hello again,

    You may find the 'All about Fibro' series of factsheets of interest, you can also download them & print for reference or take to appointments with you, if you wish to discuss further treatment;

    Best Wishes

    Emma :)

  • Hello All,

    I've been on Vit D supplements for over a year now but haven't noticed much difference in pain or mobility. Perhaps I have to take it for much longer to see any results. However, what I have noticed is that my mood has generally been better this winter and my nails look good - the Cymbalta may account for the former and less washing up for the latter - go figure!

    Sorry I couldn't be of more help.

  • I take adcal on prescription for osteoporosis.I have had Fibromyalgia for over 20 years, but was not put on vit d for the condition.

  • Hello Sparky,

    You may need your Vitamin D levels checked, Vitamin D commonly occurs in people with Fibro.

    On the FibroAction website there are a series of factsheets by Lindsey Middlemiss called the Expert Patient. Please see below some information taken from one of these articles about Vit D & low Magnesium levels

    'Vitamin D deficiency is very common, although many people don't have symptoms and may remain unaware of the problem. But as possible symptoms include fatigue, muscle pains and muscle weakness, it is easy to see how these could seem to worsen symptoms of Fibromyalgia Syndrome. It can be diagnosed through a simple blood test

    To read the whole article please click on the link below,

    I hope this helps

    Emma :)

    FibroAction Administrator

  • Been on D3 20,000 IU two a week for the last 4 months,have noticed i'm not so tired all the time now,not much change in anything else though :(

  • Hi MDaisy, Hope you're well at the moment.

    I had blood test for vit d about 18months ago. My level was down to 6!! Yipes. I take 2000 iu's each day. My levels are now high but as I have lupus as well as fibro I take them all the time as having to avoid the sun impacts on my levels.

    Take care and have good weekend.

  • Hello Lynzard,

    I am well as can be at the moment, my Vitamin D levels, Folic Acid and B12 have all improved but I am wondered whether like you a maintenance dose may be in order! I have been busy sorting out paperwork today from the Andover group, busy busy just the way I like it !

    Thank You for your comment and kind wishes. Enjoy your weekend too, hopefully as pain free as possible :)

    Best Wishes

    Emma :)

    FibroAction Administrator

  • Thanks for posting. I take multivits but assume that vit D in there won't be sufficient? Vit D deficiency in this country in winter must be almost a certainty. I wonder if that partly explains why in summer I'm better..... I also take Magnesium and agree as per your fibro facts it is helpful. Thanks.

  • Hi,

    I take vitamin D every day - have done so for years - even before my symptoms.

    I have not taken it due to any wish to however - just because it is in the vitamin tablet I already take ( contains vitamin A, C D, E, and various B vitamins)

    As I am a night owl - I thought it might be handy, I rarely see the sun :-)

  • Hi

    I can't eat lard as I don't eat meat unless there's a vegetarian alternative?

    They say that another reason for the drop in Vitamin D levels is high factor sun cream and this makes sense to me since the sun is the best source of Vit D (if you can get it!)

    Our surgery doesn't do Vit D tests anymore though I'm wondering if I should insist? They prescribe Vit D supplements instead but the kind I was prescribed caused constipation so I buy them from the health shop instead. Still, I need to know where my levels are at.

  • I take 800iu daily, as does my 8 yr old daughter.

    My level was 38, hers was 36 - so we're diagnosed as "insufficient" because it needs to be below 35 to be "deficient".

    She was given 2 shots, 3 months apart, of 100,000iu into the arm. The difference in her was immediately (within 24 hours) visible, and her teacher said she lifted her game right away at school, which was brilliant. The colour came back to her cheeks, it was amazing to see. I had to really fight to get her levels checked though.

    The gp won't recheck my levels, and has told me I'll just recieve the supplements for life. Initially they said they would retest my daughter but I'm hoping they will just grant her the right to have them for life too.

    My symptoms did improve hugely, over about a month. I notice a vast difference in how I'm feeling if I skip the pill for 2 days.

    I've been taking them for about a year and a half, my daughter for just a couple of months now.

    Our cacium levels are fine, so we don't get calcium.

    Interestingly, my father and sister have been diagnosed vit d insufficient too, and they're both still living in NZ. Apparently it's a problem with our fair skin absorbing the sunlight, and also with our bodies storing it.

    I've stopped using sunscreen altogether now, and don't put it on my kids any more either. It's quite an effort to find makeup that doesn't contain SPF, but I feel it's worth it to find it!

  • 2 years ago I suffered flu like symptoms and still am. My vit d levels were 17 so I was put on a low dose of vit d. I buy my own now but I still have problems. There seems to be a lot of controversy concerning this subject and I think we will see a lot more vit d related illnesses. Hope this has helped

  • In addition to my last post I don't take calcium

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