Mr Johnson,
I’m writing this email in sheer disgust with our NHS and it’s massive failings, that will no doubt, impact the rest of my life!
You see, I have a severe chronic disease called Endometriosis, which left me on 3 monthly follow-ups for the last 4-5 years, with absolutely no point whatsoever, as my consultant LIED to me, and told me my scans were all good, when they wasn’t.
So for 4 years, suffering severe sciatica, struggling to hold down my part time job, because I couldn’t walk. I went to the Drs time and time again! Everyday for 4 years I had to grit my teeth through pain, all while thinking it couldn’t be my Endometriosis because, you see, my scans were clear? Actually, they wasn’t! I was just about to be signed off onto 6 monthly consultations as I’d been fobbed off to ‘pain clinic’ that did absolutely nothing!
Last year my health took a serious decline! I was losing weight for no reason, plagued by rashes and that continued until November when I was hospitalised with Sepsis! I had a Tuba-Ovarian-Abscess! Well actually an Ovarian Abscess because I have no Fallopian Tube on the left side! I was hospitalised in one of your dire hospitals, called Airedale! I spent 5 days on IV antibiotics/fluids and eventually, on someone’s order, 2 weeks of antibiotics, with the notion that I was scanned at 6 week(?) to make sure the infection had gone, meaning if it hadn’t, I would ultimately go 4 weeks with no antibiotics with a severe bacterial infection(?). Funny enough, it hadn’t, my abscess was still on ultrasound come Feb/March 2021, but we’ll get to that as this is a very long and very true story.
My GP at this point did, thankfully, extend my antibiotics by a couple of weeks! Then blank refused more!
So I decided to stay with my consultant in Burnley (BSGE Endometriosis Centre) as I knew I had bowel involvement! You see, when you have bowel involvement and severe Endo, you have to be under BSGE!
So I contacted my consultants secretary around 2 December 2020, the day I was released from hospital, to find out he was off sick, but not to worry, I would go under one of his team members(?). Well things went from bad to worse, they did nothing! I soon passed my 6 weeks rescan date, and eventually got an appointment with this excuse my french, sh*t consultant, who told me, I had had an STI and I now have no mass, or infection(?)
My abscess was a very complex cyst that had abscessed!
So, thinking I’d just had an STI, put me through for a non urgent ultrasound, meaning I would’ve had to wait a further 6 weeks on top of the 6 weeks I’d already waited(?). At this point I was battling anorexia, pain, night sweats, nausea, very unwell!
My pain ramped up that week to pre hospital admission so I phoned my consultant who was now back for antibiotics to be told ‘I did not have a mass or an infection’ because that sh*t Dr I saw a few days earlier had told him so! At this point we are now in Feb 2021! I told him to send me to GAU, who thankfully accepted my request for an appointment. They scanned me there and then, and although smaller, my ovary was still abscessed! I was given antibiotics and tests for cancer, and referred straight to MDT! I was then told I needed a hysterectomy and removal of the ovary, but first I must go for an MRI! Which I did in March.
In hospital November my ovary measured around 5x6cm
Complicated Cyst, Abscessed.
In Feb my ovary measured 3.5cm
Complex Cyst, Abscessed
In March after MRI I was told it was 3cm, and if there ‘was any residual infection I would need a colostomy, because the bowel wall will go with it at surgery). I was put onto Zoladex and just left to get on with it, until they could be arsed to deal with it! Great! Zoladex is a chemical menopause.
So, tmi, but this is exactly what happened, I had a period and become increasing unwell again, losing more weight, more rashes, more pain, no relief, and definitely not better! At this point my GP surgery had already told me to go away, as was messaging to much(?), so I phoned the consultants secretary, and got told I could have HRT(?).
I used common sense and obtained antibiotics by means I won’t discuss, but thankfully, saved my own life!
Like things couldn’t get any worse, after stopping the antibiotics again, all the symptoms quickly returned and worsened!
Plagued with rashes, anorexia, nausea, vomiting, serious faecal impactions, insomnia, night sweats, pain, fatigue which has gone on now on/off for 7 months. No help from GP, other than trying to make out I was just depressed, I secured and paid for a private ultrasound! It turns out, since March, my last MRI, which showed my ovary at 3cm, well it now stands at 2.6cm, meaning it’s lost almost 4mm in size!
A healthy ovary should be 3cm minimum! Mine is far from ‘healthy’ and in fact has now started to calcify! My worry now is that the long-standing infection has now killed my ovary!
I have now, once again, contacted my sh*t GP and sent them the images and I await what they have to say!
I have been tormented for 7 whole months! Refused treatment, refused scans and just been fobbed off with ‘you’re just depressed’. Hopefully my ovary isn’t dying inside of me, or it will mean I am still battling a deadly situation!
If you could respond, I’d be grateful! Because I could’ve easily have died at any point in the last 7 months! And no doubt how much damage this is going to leave me with!
Thanking You
Fed up and tired
Endo: When your fed up what do you do?
What stage is my endo?
I'm so fed up with these burning and stabbing pains.
