I have stage 4 endometriosis, I’ve been signed off work since December with daily pain which increases with sitting.
I’ve had four operations including extensive excision. My whole pelvis including bowel, ligaments and pod are obliterated by disease. I’ve had both tubes and left ovary removed but still this horrible, disabling disease keeps returning.
I’ve had two chemical menopause which were both awful.
I now have back spasms as well as pelvic spasms. Need to pee constantly due to nerve and bladder damage.
The total exhaustion is really getting me down, most days I’m in bed more hours than I am out of bed. I wake up still feeling exhausted and nothing helps. Even the simplest of tasks feels like an unbearable effort.
And dealing with pain is so much harder with no energy.
So fed up and just think it’s going to continue getting worse.
Already been told several times by my endo specialist that my pain will be forever so I haven’t even got the post menopause “relief” to look forward to in the future.
My surgery options have run out as further surgery will cause “more harm than good”.
But any advice mainly for dealing with the exhaustion would be appreciated.