I've had stage 4 endo for many many years (I'm 30 now). Had one lap 5 years ago when I had a 8cm chocolate cyst removed from right ovary but he wouldn't touch the left side as it was such a mess - ovary attached to my bowel etc - and didn't want to do it without the bowel expert there.
Anyway things carried on, I tried every hormone treatment under the sun, had IVF and had a wonderful now 18 month old little boy. Since then I hadn't been on any hormone treatment as we were hoping to conceive again. However. January 3rd I became very ill. Long story short I ended up with Sepsis due to a tubo ovarian abscess. (Caused by endo) I spent a long time in hospital, piled full of IV antibiotics and had the abscess drained and was eventually discharged. February's period brought the very same problems and I ended up back in hospital again, antibiotics again. March same thing, abscess drained again. Told I absolutely needed surgery but they did not want to do emergency as too risky. April's period took me back into hospital again and have just been discharged yesterday.
Absolute nightmare, waiting on this surgery date but in the meantime every period (which lasts about 2 weeks) is putting me back in hospital. My left tube is blocked and I believe the fluid is getting stuck and this is what is causing the abscess to swell and become infected every month. As well as this, my ovary is attached to my bowel and the infection from the abscess /endometriosis is now in my sigmoid colon. So, it's pretty big bowel surgery. I believe they will have to take out the bad bit and resection it??
If you've managed to read all this way, well done, my question is has anyone had bowel endo surgery? What did they do? Had your endo actually infiltrated your bowel or was it on the outside? And most terrifying of all, has anyone needed a colostomy bag afterwards?
Any words, thoughts, advice, sympathies would be massively appreciated. Love to all