7 months on! Fallen out with my Drs! Told them to F off!

[Heloo85]

So I’ve been tormented for 7 months now! I now weigh 6st 3, and probably falling....

I walked into A & E last night, because I couldn’t take anymore! My pain was horrendous and I felt like I just wanted to throw up all over the place!

It’s impossible to know if I have an infection or not on Zoladex, because normally for something like an abscess you’ll get night sweats and transient fevers! Well I get hot flashes and night sweats on Zoladex.

Bloods atm don’t show infection but my heart rate was 140 because my pain was so severe! I honestly don’t know where this pain is coming from! Well I do, it’s my ovary/bowel, but why, after 7 months, would it still be killing? The dr at A & E said they should be scanning me to keep an eye, no such luck with the knobbers I have for Drs, but does anyone know why this would hurt now?

No doubt it has something to do with the fact they left an abscess on it for 3 months, but why isn’t it healing, or has it healed wrong? I don’t know! Ugh

[Hidden]

Hi Heloo,That sounds like a truly awful time. You poor thing, you.

I completely understand why you would be justifiably angry.

Unfortunately, there's a process to navigate to get scans. From multiple hospital, consultant, and GP visits, this is what I understand of it...

At A&E, they only check to make sure you are not going to die today. If you can be sent home, and not die that day, they will send you home. If they think you are at risk of dying that day, they will operate on you. Ok, a bit of an exaggeration, but I think you know what I mean. They look after emergencies only.

At the GP, they can refer you to a consultant with a specialism in endometriosis.

The consultant can request a scan for you - e.g. ultrasound or MRI. The constant should discuss the scan results and next steps with you.

So, when you have time to plan, please try your best to navigate to who you need to see. Take good care of yourself. 💚

[Heloo85 in reply to Hidden]

Oh I know the hospital wouldn’t scan me! The Dr at the hospital said they (consultant/gp) should be offering regular scans to monitor the situation since my TOA, because 7 months on, I shouldn’t be in this amount of pain!

I mean, I ain’t soft, I have chronic pelvic pain for 4 years, to the point it’s effected my mobility, without medicating it, and still holding down a job... But this pain? This is serious level of pain, and no one knows why I have it! How much damage did that abscess cause? What’s going to be the end result? Will it become life threatening? Am I at risk of another infection? Will my bowel eventually pack in? These are things my gp/consultant should be ‘watching’ until they can do surgery, or will do it! Xx

[635703 in reply to Heloo85]

So google Patient Advice and Liaison Service in your County with NHS.

This is where you complain and it’s official and they have a process and it takes time but they get shit sorted for you! Like, really sorted.

Try there and be super clear you need help immediately!

So sorry this is horrific and I hear the distress and I am so very sorry for your circumstances!! X

[Heloo85 in reply to Hidden]

I was diagnosed with Endo stage 4 DIE, 5 years ago, after a sexual assault caused me to explode in a massive pelvic infection... Long story short, I have frozen pelvis on left, so severe I have a tilted pelvis, which causes chronic sciatica! I know what pain feels like as I’ve been in it everyday for the last 5 years suffering impaction after impaction, chronic sciatica/arse pain so severe I can no longer get passed my knees when I bend over.. I am accustomed to pain.....

This pain? This is on another planet, so severe I now have a limp on my left leg and a heart rate of around a 100 as my body tries to cope with it!

I thought infection, hence why I went to A & E, because not only did I have pain that had ramped up to a new level, I wanted to throw my guts up and a heart rate of 130+ that wouldn’t come back down in my entire shift at work.

Of course A & E is there for emergencies, but to be fair, my health is so poor I don’t know if I’m in the midst of one or not... I mean even sepsis didn’t feel that bad to be fair! Drs where surprised to see me out of bed, as my bloods showed I was dying... Little did they know, I was never in it... *hate hospitals and I don’t tend to go unless I’m unsure, I have spent many of nights at home when I should’ve been in hospital*

Now I don’t know what’s causing this pain, but it’s severe, hence why the Dr at A & E said my consultant/gp should be monitoring the situation, as it’s clearly not right, but wasn’t life threatening last night, so she couldn’t do anything! Xx

[monika-me]

I’m so so sorry you’re going through all this with little to no support from your doctor. Unfortunately, I know first hand how it is to have a doctor you lost trust in and feel dismissed... as much as I believe it’s important to file complaints if you feel mistreated this takes energy and perhaps something to think about in the future when you regain it and are in a better place - right now I would really seek a new GP practice with a GP who will listen and support your needs. And if you have access to private healthcare then I’d strongly consider it as getting scans and tests is much much quicker and you have more influence over who your doctors are plus you can self-refer to certain specialists without GP referral (that’s what I did after all - my GP suggested to me to go on a pill to manage pain despite knowing we want to try for a child 🤯) though this can get quite expensive over time - but it’s an option nevertheless. Take care dear x

[Heloo85 in reply to monika-me]

Thank you for your reply! I am definitely in the process of moving practice! I wish I could afford to go private! I’m awaiting surgery, but it’s the torment between! I can’t manage my pain and literally having problem after problem! Insomnia, excessive weigh loss, tachycardia, chest pain, bowel impactions, probably nervous breakdown, list is endless! But definitely not coping well 🤣.Xx