Everything went really well, the consultant was very pleased with how things are going. I've been given tibolone (livial) to try for a couple of months initially, but he said there were better forms of HRT available and said that I could switch to oestrogen patches in a few weeks, which in his opinion are better than tibolone. I've now been discharged by the hospital and won't have to go back unless I start to have further problems (in which case they said to get in touch with them and they will see me no questions asked).
I'm feeling really well - I can't remember the last time I needed painkillers. Sex doesn't hurt any more. My bowel issues (chronic constipation) are slowly improving and I'm not needing laxatives every day. I know there is a possibility that the disease might return in the future but for now I'm feeling very positive and pleased with my decision to have the surgery.
The key thing I would say, especially if you have severe disease and a hysterectomy is being offered, is to really be aware quite how serious this surgery is and make sure that you see the best possible surgeon, even if it means waiting a bit longer (and I know how hard this is). I had my surgery at the big bsge centre in London and I'm really pleased with the outcome.
Take care everyone. x.