Experiences with

Tibolone

I didn't have the discomfort before starting the Tibolone. It's also making me feel really flat. I'm trying to decide whether to stop the Tibolone. I don't know whether it'll settle. Should I still be on Decapeptyl injections if not taking Tibolone?

I started on tibolone last Thursday started with a migraine weds pm and can't shake it off has anyone else been like this? I get oestrogen fed migraines when my period comes but since being on decapeptyl I haven't had them. Anyone similar? Thank you.

I’m very lucky to have a supportive GP who is really interested in helping women who suffers/suffered with endo (like myself), I had an appointment the other day and was talking about alternatives to Tibolone, I’ve been on it since Nov 2019 after my Oophorectomy.

I'm on Tibolone but I'm still in so much pain. Has anyone had experience of this and have they found sequential hrt better? I don't think the Tibolone is strong enough. The specialist has suggested I stop hrt but there is no way I can, as the menopausal symptoms were brutal.

Since I had my injection, I have been taking Tibolone daily. Has anyone had similar experiences?.Is Tibolone the best choice for HRT. When I had my injection in February and the gel and Utrogestan tablet. It was horrendous, but to be fair I did not give it a chance, as inly had one injection.

Hi everyone... has anyone else had bleeding when on tripterelin monthly injections with daily tibolone add back? Had my first injection about 3 weeks ago after surgery, and this would have been around the time of my period - had very light bleeding yesterday and slightly heavier today.

Will Tibolone trigger endo if I'm on injections? I've been off work for two weeks because of the symptoms. They're a bit more manageable so back to work on Monday! So grateful for this group x

They've given me Tibolone but I daren't take it until the UTI/ irritation is better. Part of me wants to stop the injections and have hefty pain killers instead x Any advice would be great fully received

I've been put on Tibolone to help with the pain and menopausal symptoms. It is helping slightly with the menopausal symptoms but the pain is awful. I'd be interested in what others have taken to help with their pain/symptoms.

Hi I have been on Zoladex injections for a year now and have had add back HRT (tibolone) for about 6 weeks.The add back HRT has really helped the hot flushes & muscle pain but over the past 2 weeks I have been suffering with awful bloating which increases when I eat or drink anything.

Hi, I have just started a 3month trial of Zoladex implant / injection and daily Tiblone. I was wondering if anyone else has tried this? I have been given a clearance of stage 3 and 4 endo but they are not sure if I have stage 1 or 2. Ive always struggled with IBS and painful periods which I went

I had the Prostap injection for one month, alongside Tibolone. It really affected me and so I decided not to continue. After a discussion with my GP, I went on the mini pill. However, I keep bleeding; and it's for prolonged periods of time too.

Hi everyone, I had a gynecologist offer me Tibolone HRT tablets alongside 3 injections of Zoladex into the abdominal wall 4x weekly. Looking these medications up I've seen a ton of side effects like most meds.

I then had the GnRH injection lasting 3 months… I’m awaiting my second surgery within this time 🤞 Taking tibolone to help with side affects. I no longer really know what’s good or bad care… What’s normal with this disease. From the pains in back to all the way down the legs.

Hi All, I haven't posted in a while, but I feel like I'm hitting rock bottom again 🙈I was doing well on 4-weekly Prostap with add-back tibolone, so my GP suggested, for ease, to move to 12-weekly Prostap, that was 6 weeks ago.

Wondering if anyone could tell me their experience of coming off a course of Prostap (with or without Tibolone/HRT) please? If you’ve been through this, can I ask whether you just stop cold turkey? Or is it done gradually? Do you need to let your gynae know?

Current regime 150mg Levothyroxine 1 grain Armour (60mg) Other meds: Tibolone (HRT) Bisoprolol (very low dose) A great many thanks in advance for your wise advice xxx

the Tibolone.

I was given the first monthly dose of decapeptyl on 11th Jan and a daily Tibolone HRT tablet to put me into chemical menopause. The thinking behind this was that it would remove the input from my ovaries and give a diagnosis of severe PMS or PMDD if I felt better as a result.

Hi I've been on Tibolone since having full hysterectomy 3 years ago, following severe and rapid growing endometriosis. I went through such an ordeal with multiple surgeries in the end and whilst I'm ok and pain free now, it's always in the back of my mind that the endo could come back.