Hello my favourite pen-pals!
I have something good to share!!!
Lots of us have been recommended medical menopause with injections and HRT add-back to go with it.
Well, I can proudly and joyously report that I've gotten through the first two rough weeks after my first decapeptyl injection (side effects of starting included burning sensation in abdomen and high fatigue), and I feel... Drum roll... Well! Oh my goodness! I've felt sick with endometriosis for so very long, and I feel ok today.
Now, I know we all are unique, and what works for one person does not always work for another person, but I wanted to share that in some cases (eg me) - it helps a lot!
In the interest of making a complete list, I'll let you know what I'm taking/doing that is likely helping to improve the picture:
- Decapeptyl injection
- HRT add-back tibolone
- duloxetine for neuropathic pain & mood
- diclofenac anti inflammatory
- cosmocol to reduce constipation
- supplements: well woman max, ginger tablets, probiotic, peppermint oil capsules with enteric coating
- diet - avoiding resistant starches, avoiding instant coffee, avoiding milk
- work - altered hours to 2/3 time temporarily
But really, the only new things on the list are the Decapeptyl & tibolone, so I'm fairly certain these are giving me the boost of feeling well today.
I hope this helps some of the ladies who are wondering about the injections.
Of course there's the whole topic of surgery, but, for me, I'm waiting for my MRI scan & discussion of results before considering what to do on that front.
Update: For context, I have stage IV endometriosis, diagnosed by laparoscopy. I am awaiting advice on surgery from a gynaecologist and a colorectal surgeon at a BSGE accredited endometriosis centre.
Other update: the first period at the end of the first month on decapeptyl was hard. It was just light spotting for 10 days or so, but I really felt the swelling burning feeling of the endo in my pelvis. After the period, things seem to be getting much better again.